Retaining hispanics: Lessons from the hispanic community health study/ study of latinos

Krista M. Perreira; Maria De Los Angeles Abreu; Beibo Zhao; Marston E. Youngblood; Cesar Alvarado; Nora Cobo; Madeline Crespo-Figueroa; Melawhy L. Garcia; Aida L. Giachello; Maria S. Pattany; Ana C. Talavera; Gregory A. Talavera

doi:10.1093/aje/kwaa003

Retaining hispanics: Lessons from the hispanic community health study/ study of latinos

Krista M. Perreira^*, Maria De Los Angeles Abreu, Beibo Zhao, Marston E. Youngblood, Cesar Alvarado, Nora Cobo, Madeline Crespo-Figueroa, Melawhy L. Garcia, Aida L. Giachello, Maria S. Pattany, Ana C. Talavera, Gregory A. Talavera

^*Corresponding author for this work

Preventive Medicine

Research output: Contribution to journal › Article › peer-review

16 Scopus citations

Abstract

We aimed to examine the retention of Hispanics/Latinos participating in the Hispanic Community Health Study/Study of Latinos (HCHS/SOL), a prospective cohort study of 16,415 adults in 4 US cities who were enrolled between 2008 and 2011. We summarized retention strategies and examined contact, response, and participation rates over 5 years of annual follow-up interviews. We then evaluated motivations for participation and satisfaction with retention efforts among participants who completed a second in-person interview approximately 6 years after their baseline interview. Finally, we conducted logistic regression analyses estimating associations of demographic, health, and interview characteristics at study visit 1 (baseline) with participation, high motivation, and high satisfaction at visit 2. Across 5 years, the HCHS/SOL maintained contact, response, and participation rates over 80%. The most difficult Hispanic/Latino populations to retain included young, single, US-born males with less than a high school education. At visit 2, we found high rates of motivation and satisfaction. HCHS/SOL participants primarily sought to help their community and learn more about their health. High rates of retention of Hispanics/Latinos can be facilitated through the employment of bilingual/bicultural staff and the development of culturally tailored retention materials.

Original language	English (US)
Pages (from-to)	518-531
Number of pages	14
Journal	American journal of epidemiology
Volume	189
Issue number	6
DOIs	https://doi.org/10.1093/aje/kwaa003
State	Published - Jun 1 2020

Funding

General financial support was provided by the Carolina Population Center (National Institutes of Health center grant P2C HD050924) and the Integrating Special Populations/North Carolina Translational and Clinical Sciences (NC TraCS) Institute (grant award ILITR002489). This research was funded by the Hispanic Community Health Study/Study of Latinos (HCHS/SOL), which was supported by contracts between the National Heart, Lung, and Blood Institute and the University of North Carolina (contract N01-HC65233), the University of Miami (contract N01-C65234), Albert Einstein College of Medicine (contract N01-HC65235), Northwestern University (contract N01-HC65236), and San Diego State University (contract N01-HC65237). The following institutes/centers/offices contributed to the HCHS/SOL through a transfer of funds to the National Heart, Lung, and Blood Institute: the National Center on Minority Health and Health Disparities, the National Institute on Deafness and Other Communication Disorders, the National Institute of Dental and Craniofacial Research, the National Institute of Diabetes and Digestive and Kidney Diseases, the National Institute of Neurological Disorders and Stroke, and the Office of Dietary Supplements. Medicine (contract N01-HC65235), Northwestern University (contract N01-HC65236), and San Diego State University (contract N01-HC65237). The following institutes/centers/offices contributed to the HCHS/SOL through a transfer of funds to the National Heart, Lung, and Blood Institute: the National Center on Minority Health and Health Disparities, the National Institute on Deafness and Other Communication Disorders, the National Institute of Dental and Craniofacial Research, the National Institute of Diabetes and Digestive and Kidney Diseases, the National Institute of Neurological Disorders and Stroke, and the Office of Dietary Supplements. General financial support was provided by the Carolina Population Center (National Institutes of Health center grant P2C HD050924) and the Integrating Special Populations/North Carolina Translational and Clinical Sciences (NC TraCS) Institute (grant award ILITR002489). This research was funded by the Hispanic Community Health Study/Study of Latinos (HCHS/SOL), which was supported by contracts between the National Heart, Lung, and Blood Institute and the University of North Carolina (contract N01-HC65233), the University of Miami (contract N01-C65234), Albert Einstein College of

Keywords

Cohort studies
Follow-up
Hispanics/Latinos
Longitudinal population-based studies
Recruitment
Retention

ASJC Scopus subject areas

General Medicine

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10.1093/aje/kwaa003

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Perreira, K. M., De Los Angeles Abreu, M., Zhao, B., Youngblood, M. E., Alvarado, C., Cobo, N., Crespo-Figueroa, M., Garcia, M. L., Giachello, A. L., Pattany, M. S., Talavera, A. C., & Talavera, G. A. (2020). Retaining hispanics: Lessons from the hispanic community health study/ study of latinos. American journal of epidemiology, 189(6), 518-531. https://doi.org/10.1093/aje/kwaa003

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title = "Retaining hispanics: Lessons from the hispanic community health study/ study of latinos",

abstract = "We aimed to examine the retention of Hispanics/Latinos participating in the Hispanic Community Health Study/Study of Latinos (HCHS/SOL), a prospective cohort study of 16,415 adults in 4 US cities who were enrolled between 2008 and 2011. We summarized retention strategies and examined contact, response, and participation rates over 5 years of annual follow-up interviews. We then evaluated motivations for participation and satisfaction with retention efforts among participants who completed a second in-person interview approximately 6 years after their baseline interview. Finally, we conducted logistic regression analyses estimating associations of demographic, health, and interview characteristics at study visit 1 (baseline) with participation, high motivation, and high satisfaction at visit 2. Across 5 years, the HCHS/SOL maintained contact, response, and participation rates over 80%. The most difficult Hispanic/Latino populations to retain included young, single, US-born males with less than a high school education. At visit 2, we found high rates of motivation and satisfaction. HCHS/SOL participants primarily sought to help their community and learn more about their health. High rates of retention of Hispanics/Latinos can be facilitated through the employment of bilingual/bicultural staff and the development of culturally tailored retention materials.",

keywords = "Cohort studies, Follow-up, Hispanics/Latinos, Longitudinal population-based studies, Recruitment, Retention",

author = "Perreira, {Krista M.} and {De Los Angeles Abreu}, Maria and Beibo Zhao and Youngblood, {Marston E.} and Cesar Alvarado and Nora Cobo and Madeline Crespo-Figueroa and Garcia, {Melawhy L.} and Giachello, {Aida L.} and Pattany, {Maria S.} and Talavera, {Ana C.} and Talavera, {Gregory A.}",

note = "Publisher Copyright: {\textcopyright} The Author(s) 2020. Published by Oxford University Press on behalf of the Johns Hopkins Bloomberg School of Public Health. All rights reserved. For permissions, please e-mail: [email protected].",

year = "2020",

month = jun,

day = "1",

doi = "10.1093/aje/kwaa003",

language = "English (US)",

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Perreira, KM, De Los Angeles Abreu, M, Zhao, B, Youngblood, ME, Alvarado, C, Cobo, N, Crespo-Figueroa, M, Garcia, ML, Giachello, AL, Pattany, MS, Talavera, AC & Talavera, GA 2020, 'Retaining hispanics: Lessons from the hispanic community health study/ study of latinos', American journal of epidemiology, vol. 189, no. 6, pp. 518-531. https://doi.org/10.1093/aje/kwaa003

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T2 - Lessons from the hispanic community health study/ study of latinos

AU - Perreira, Krista M.

AU - De Los Angeles Abreu, Maria

AU - Zhao, Beibo

AU - Youngblood, Marston E.

AU - Alvarado, Cesar

AU - Cobo, Nora

AU - Crespo-Figueroa, Madeline

AU - Garcia, Melawhy L.

AU - Giachello, Aida L.

AU - Pattany, Maria S.

AU - Talavera, Ana C.

AU - Talavera, Gregory A.

N1 - Publisher Copyright: © The Author(s) 2020. Published by Oxford University Press on behalf of the Johns Hopkins Bloomberg School of Public Health. All rights reserved. For permissions, please e-mail: [email protected].

PY - 2020/6/1

Y1 - 2020/6/1

N2 - We aimed to examine the retention of Hispanics/Latinos participating in the Hispanic Community Health Study/Study of Latinos (HCHS/SOL), a prospective cohort study of 16,415 adults in 4 US cities who were enrolled between 2008 and 2011. We summarized retention strategies and examined contact, response, and participation rates over 5 years of annual follow-up interviews. We then evaluated motivations for participation and satisfaction with retention efforts among participants who completed a second in-person interview approximately 6 years after their baseline interview. Finally, we conducted logistic regression analyses estimating associations of demographic, health, and interview characteristics at study visit 1 (baseline) with participation, high motivation, and high satisfaction at visit 2. Across 5 years, the HCHS/SOL maintained contact, response, and participation rates over 80%. The most difficult Hispanic/Latino populations to retain included young, single, US-born males with less than a high school education. At visit 2, we found high rates of motivation and satisfaction. HCHS/SOL participants primarily sought to help their community and learn more about their health. High rates of retention of Hispanics/Latinos can be facilitated through the employment of bilingual/bicultural staff and the development of culturally tailored retention materials.

AB - We aimed to examine the retention of Hispanics/Latinos participating in the Hispanic Community Health Study/Study of Latinos (HCHS/SOL), a prospective cohort study of 16,415 adults in 4 US cities who were enrolled between 2008 and 2011. We summarized retention strategies and examined contact, response, and participation rates over 5 years of annual follow-up interviews. We then evaluated motivations for participation and satisfaction with retention efforts among participants who completed a second in-person interview approximately 6 years after their baseline interview. Finally, we conducted logistic regression analyses estimating associations of demographic, health, and interview characteristics at study visit 1 (baseline) with participation, high motivation, and high satisfaction at visit 2. Across 5 years, the HCHS/SOL maintained contact, response, and participation rates over 80%. The most difficult Hispanic/Latino populations to retain included young, single, US-born males with less than a high school education. At visit 2, we found high rates of motivation and satisfaction. HCHS/SOL participants primarily sought to help their community and learn more about their health. High rates of retention of Hispanics/Latinos can be facilitated through the employment of bilingual/bicultural staff and the development of culturally tailored retention materials.

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KW - Longitudinal population-based studies

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KW - Retention

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Retaining hispanics: Lessons from the hispanic community health study/ study of latinos

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