Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey

Debra E. Irwin, Brian D. Stucky, David Thissen, Esi Morgan DeWitt, Jin Shei Lai, Karin Yeatts, James W. Varni, Darren A. DeWalt

Research output: Contribution to journalArticle

83 Scopus citations

Abstract

Purpose This paper describes a large-scale administration of the Patient-Reported Outcomes Measurement Information System (PROMIS) pediatric items to evaluate measurement characteristics. Methods Each child completed one of seven test forms containing items from a pool of 293 PROMIS items and four legacy scales. PROMIS items covered six domains (physical function, emotional distress, social role relationship, fatigue, pain, and asthma). Results From January 2007 to May 2008, 4,129 children aged 8-17 were enrolled. The sample was 51% female, 55% aged 8-12, 42% minority race and 17% were Hispanic ethnicity. Approximately, 35% of the children participating in the survey consulted a clinician for a chronic illness diagnosis or treatment within 6 months prior to study enrollment. Conclusions The final PROMIS pediatric item banks include physical function (n = 52 items), emotional distress (n = 35 items), social role relationships (n = 15 items), fatigue (n = 34 items), pain (n = 13 items), and asthma (n = 17 items). The initial calibration data were provided by a diverse set of children with varying health states (e.g., children with a variety of common chronic illnesses) and racial/ethnic backgrounds.

Original languageEnglish (US)
Pages (from-to)585-594
Number of pages10
JournalQuality of Life Research
Volume19
Issue number4
DOIs
StatePublished - May 2010

Keywords

  • HRQOL
  • PRO
  • PROMIS
  • Pediatrics
  • Scale development
  • Surveys

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

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    Irwin, D. E., Stucky, B. D., Thissen, D., DeWitt, E. M., Lai, J. S., Yeatts, K., Varni, J. W., & DeWalt, D. A. (2010). Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey. Quality of Life Research, 19(4), 585-594. https://doi.org/10.1007/s11136-010-9618-4