Sickle Cell Disease: An Opportunity for Palliative Care Across the Life Span

Diana J. Wilkie*, Bonnye Johnson, A. Kyle Mack, Richard Labotka, Robert E. Molokie

*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

21 Scopus citations

Abstract

Sickle cell disease is a chronic illness that affects patients physically and emotionally and can do so at an early age. An ecological model of palliative care that involves improved communication among the health care team, patients, and their families can be beneficial. Open and honest communication regarding advance care planning, disease management, relief of pain and other symptoms, and bereavement and grief are all important for the patient, family, and health care team. Given the multiple acute and chronic complications of sickle cell disease, an approach to care that is holistic and comprehensive may help to improve a patient's biologic function and the perceived health, functional status, and quality of life of the patient and family.

Original languageEnglish (US)
Pages (from-to)375-397
Number of pages23
JournalNursing Clinics of North America
Volume45
Issue number3
DOIs
StatePublished - Sep 2010

Keywords

  • Advance care planning
  • Bereavement
  • Grief
  • Pain
  • Palliative care
  • Sickle cell
  • Symptoms

ASJC Scopus subject areas

  • Nursing(all)

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