Spirituality and Religiosity in Adolescents Living With Sickle Cell Disease

Dora Clayton-Jones*, Kristin Haglund, Ruth Ann Belknap, Jame Schaefer, Alexis A. Thompson

*Corresponding author for this work

Research output: Contribution to journalArticle

10 Scopus citations

Abstract

This study purports to address paucity in the literature regarding how adolescents with sickle cell disease (SCD) describe and experience spirituality and religiosity (S/R). This was a qualitative descriptive study. Two semi-structured interviews were conducted with nine adolescents (Mage = 16.2 years). Data were analyzed using a template analysis style and a concurrent analysis process of data reduction. Three major themes encompassed the participants’ descriptions of the relationships between S/R, health and illness in their lives including S/R as sources for coping, influence of S/R beliefs on health and illness, and sharing S/R with Health Care Providers (HCPs). S/R as coping mechanisms included six threads: interconnecting with God, interconnecting with others, interconnecting with creative arts, scriptural metanarratives, transcendent experiences, and acceptance and finding meaning. Expectations of health providers included two threads: Religiosity is private/personal and sharing spiritual and religious beliefs is risky. S/R are particularly salient for adolescents with SCD.

Original languageEnglish (US)
Pages (from-to)686-703
Number of pages18
JournalWestern Journal of Nursing Research
Volume38
Issue number6
DOIs
StatePublished - Jan 1 2015

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Keywords

  • adolescent
  • pediatrics
  • religiosity
  • sickle cell disease
  • spirituality

ASJC Scopus subject areas

  • Nursing(all)

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