Spirituality and Religiosity in Adolescents Living With Sickle Cell Disease

Dora Clayton-Jones*, Kristin Haglund, Ruth Ann Belknap, Jame Schaefer, Alexis A. Thompson

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

24 Scopus citations


This study purports to address paucity in the literature regarding how adolescents with sickle cell disease (SCD) describe and experience spirituality and religiosity (S/R). This was a qualitative descriptive study. Two semi-structured interviews were conducted with nine adolescents (Mage = 16.2 years). Data were analyzed using a template analysis style and a concurrent analysis process of data reduction. Three major themes encompassed the participants’ descriptions of the relationships between S/R, health and illness in their lives including S/R as sources for coping, influence of S/R beliefs on health and illness, and sharing S/R with Health Care Providers (HCPs). S/R as coping mechanisms included six threads: interconnecting with God, interconnecting with others, interconnecting with creative arts, scriptural metanarratives, transcendent experiences, and acceptance and finding meaning. Expectations of health providers included two threads: Religiosity is private/personal and sharing spiritual and religious beliefs is risky. S/R are particularly salient for adolescents with SCD.

Original languageEnglish (US)
Pages (from-to)686-703
Number of pages18
JournalWestern Journal of Nursing Research
Issue number6
StatePublished - Jun 2015


  • adolescent
  • pediatrics
  • religiosity
  • sickle cell disease
  • spirituality

ASJC Scopus subject areas

  • General Nursing


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