Surrogate Decision Making for Children: Who Should Decide?

Michael Fishman, Erin Talati Paquette, Rupali Gandhi, Tricia Rae Pendergrast, Michelle Park, Erin Flanagan, Lainie Friedman Ross*

*Corresponding author for this work

Research output: Contribution to journalArticle

2 Scopus citations

Abstract

Objective: To identify caregivers' views on preferred surrogate decision makers for their children. Study design: A respondent-anonymous survey was distributed to a convenience sample of adults who accompanied a child to general and subspecialty pediatric care at 2 different institutions or were at the bedside of a child in the pediatric intensive care unit at a third institution in Chicago. Results: We collected 462 valid surveys. The average age of the legal guardian and accompanying child was 36.8 years and 6.6 years, respectively. Most legal guardians designated “other parent with legal authority” as their first choice surrogate decision maker (70%). Respondent's sex, respondent's age, child's age, and child's ethnicity had no effect on first choice surrogate decision maker. “Other parent with legal authority” was less likely to be first choice surrogate if respondents had Medicaid insurance, less than a college degree, or lived in a non-nuclear household (P<.01 for all factors). The surrogacy ladder selected by 31% of legal guardians was “other parent with legal authority,” “child's grandparent(s),” and “child's aunt(s) or uncle(s).” No other sequence received more than 10% designation. Study site had no effect on surrogate preference (P = .30). Conclusions: A surrogacy priority ladder for minors needs to include relatives who are often not included in state surrogacy statutes (eg, grandparents, aunts and uncles). The most popular surrogacy ladder will not be ideal for many families. Parents need to be informed and empowered to choose alternate surrogates, and documented preferences must be easily and widely accessible.

Original languageEnglish (US)
Pages (from-to)221-226
Number of pages6
JournalJournal of Pediatrics
Volume220
DOIs
StatePublished - May 2020

Keywords

  • decision maker
  • ethics
  • law
  • parents
  • pediatric decision making
  • proxy decision maker

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

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