“Take out this thing”: A teen’s decision about removal of a gastrostomy tube

Hazel M. Gutiérrez, Yuri Nakashima, Sabrina Derrington, John D. Lantos*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review


Medical decision-making in children is not a static process. In pediatrics, parents and health professionals actively participate in clinical decision-making. They always consider what is in the child’s best interest and sometimes weigh that against other considerations. As children get older, the level of participation in this process may change according to their own cognitive development and maturity level. In this article, we present a case of an adolescent with a life-limiting condition at the end of life. He wants to participate in his health management and speak for himself. He does not always prefer interventions that his parents think are best. Health care practitioners must include mature minors in the decision-making process and be willing to listen to their voices.

Original languageEnglish (US)
Article numbere20191621
Issue number3
StatePublished - Mar 1 2020

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health


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