TY - GEN
T1 - Taking care of myself as long as i can
T2 - 2021 CHI Conference on Human Factors in Computing Systems: Making Waves, Combining Strengths, CHI 2021
AU - Dixon, Emma
AU - Piper, Anne Marie
AU - Lazar, Amanda
N1 - Funding Information:
Thank you to participants and those who have provided feedback on versions of this paper, including Priya Kumar, Mary Radnofsky, and anonymous reviewers. This work was supported, in part, by grant 90REGE0008, U.S. Admin. for Community Living, NIDILRR, Dept. of Health & Human Services, NSF Grant IIS-1551574, and the National Science Foundation Graduate Research Fellowship Program under Grant No. DGE 1840340. Opinions expressed do not necessarily represent ofcial policy of the Federal government.
Publisher Copyright:
© 2021 ACM.
PY - 2021/5/6
Y1 - 2021/5/6
N2 - Self-management research in HCI has addressed a variety of conditions. Yet, this literature has largely focused on neurotypical populations and chronic conditions that can be managed, leaving open questions of what self-management might look like for populations with progressive cognitive impairment. Grounded in interviews with seventeen technology savvy people with mild to moderate dementia, our analysis reveals their use of technological and social resources as part of the work of self-management. We detail how participants design self-management systems to enable desired futures, function well in their social world, and maintain control. Our discussion broadens the notion of self-management to include future-oriented, sociotechnical, self-determinate design.We advocate for expanding the way technologists, designers, and HCI scholars view people with mild to moderate dementia to recognize them as inventive creators and capable actors in self-management.
AB - Self-management research in HCI has addressed a variety of conditions. Yet, this literature has largely focused on neurotypical populations and chronic conditions that can be managed, leaving open questions of what self-management might look like for populations with progressive cognitive impairment. Grounded in interviews with seventeen technology savvy people with mild to moderate dementia, our analysis reveals their use of technological and social resources as part of the work of self-management. We detail how participants design self-management systems to enable desired futures, function well in their social world, and maintain control. Our discussion broadens the notion of self-management to include future-oriented, sociotechnical, self-determinate design.We advocate for expanding the way technologists, designers, and HCI scholars view people with mild to moderate dementia to recognize them as inventive creators and capable actors in self-management.
KW - Chronic care
KW - Dementia
KW - Self-determination
KW - Self-management
KW - Self-management technology
KW - Sociotechnical systems
UR - http://www.scopus.com/inward/record.url?scp=85106703780&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85106703780&partnerID=8YFLogxK
U2 - 10.1145/3411764.3445225
DO - 10.1145/3411764.3445225
M3 - Conference contribution
C2 - 34250524
AN - SCOPUS:85106703780
T3 - Conference on Human Factors in Computing Systems - Proceedings
BT - CHI 2021 - Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems
PB - Association for Computing Machinery
Y2 - 8 May 2021 through 13 May 2021
ER -