TY - JOUR
T1 - The Bureau of sages
T2 - Incorporating older adult voice into meaningful research
AU - Eisenstein, Amy R.
AU - Milstein, Laura
AU - Johnson, Rebecca
AU - Berman, Rebecca
N1 - Funding Information:
The Bureau of Sages was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award (2640-CJE). It was supported by a project team that included the project lead (director of research at CJE SeniorLife), project manager (senior researcher at CJE SeniorLife), Lieberman staff (life enrichment and executive staff), “Research Coaches” (volunteers and interns), and an external evaluator (research faculty at Northwestern University). All roles were part time, and tasks were assigned with an eye towards sustainability.
Funding Information:
This work was supported by the Patient-Centered Outcomes Research Institute®(PCORI®) (2640-CJE). The statements presented in this article are solely the responsibility of the author(s) and do not necessarily represent the views of PCORI®, its Board of Governors or Methodology Committee. We acknowledge all participants of the Bureau of Sages, especially the older adult Sages for the time, energy, and passion that they put into the work. The original bureau was made up of older adults Ariella B., Arnold A., Bonnie K., Carol F-S., Janice B-O., Karen C., Mary Ana N., Michael W., Nancy W., Sherri P., and Susie R. Researcher/clinician stakeholders on the Bureau included Jen Brown, MPH, Josh Hauser, MD, Raj Shah, MD, Robyn Stone, DrPH, Tamar Heller, PhD, and Tom
Publisher Copyright:
© 2020 Johns Hopkins University Press.
Copyright:
Copyright 2020 Elsevier B.V., All rights reserved.
PY - 2020/9/1
Y1 - 2020/9/1
N2 - Background: Older adults receiving long-term care are often excluded from the design, development, and implementation of health-related research. The project aimed to create, implement and evaluate a sustainable research advisory board consisting of researchers, clinicians, and older adults living at home or in a skilled nursing facility (SNF). Methods: To initiate Bureau development, 15 older adults, researchers, and clinicians came together to engage in research. In meetings and retreats, stakeholders mutually developed group procedures, roles, and values. Process evaluation focused on stakeholder experiences, development of the Bureau, and its impact. Results: Trained Sages were able to offer meaningful input to researchers and present their own proposal at a conference. Lessons learned centered around continuously seeking feedback from participants, emphasizing co-learning, adapting to virtual engagement, and remaining flexible in structure and content of meetings. Conclusions: Results can inform future development of research advisory boards of older adult populations.
AB - Background: Older adults receiving long-term care are often excluded from the design, development, and implementation of health-related research. The project aimed to create, implement and evaluate a sustainable research advisory board consisting of researchers, clinicians, and older adults living at home or in a skilled nursing facility (SNF). Methods: To initiate Bureau development, 15 older adults, researchers, and clinicians came together to engage in research. In meetings and retreats, stakeholders mutually developed group procedures, roles, and values. Process evaluation focused on stakeholder experiences, development of the Bureau, and its impact. Results: Trained Sages were able to offer meaningful input to researchers and present their own proposal at a conference. Lessons learned centered around continuously seeking feedback from participants, emphasizing co-learning, adapting to virtual engagement, and remaining flexible in structure and content of meetings. Conclusions: Results can inform future development of research advisory boards of older adult populations.
KW - Access and evaluation
KW - Community health partnerships
KW - Community health research
KW - Health priorities
KW - Homebound persons
KW - Manpower and services
KW - Residential facilities
UR - http://www.scopus.com/inward/record.url?scp=85093903181&partnerID=8YFLogxK
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U2 - 10.1353/cpr.2020.0041
DO - 10.1353/cpr.2020.0041
M3 - Article
C2 - 33416611
AN - SCOPUS:85093903181
VL - 14
SP - 359
EP - 370
JO - Progress in Community Health Partnerships: Research, Education, and Action
JF - Progress in Community Health Partnerships: Research, Education, and Action
SN - 1557-0541
IS - 3
ER -