The Bureau of sages: Incorporating older adult voice into meaningful research

Amy R. Eisenstein, Laura Milstein, Rebecca Johnson, Rebecca Berman

Research output: Contribution to journalArticlepeer-review

Abstract

Background: Older adults receiving long-term care are often excluded from the design, development, and implementation of health-related research. The project aimed to create, implement and evaluate a sustainable research advisory board consisting of researchers, clinicians, and older adults living at home or in a skilled nursing facility (SNF). Methods: To initiate Bureau development, 15 older adults, researchers, and clinicians came together to engage in research. In meetings and retreats, stakeholders mutually developed group procedures, roles, and values. Process evaluation focused on stakeholder experiences, development of the Bureau, and its impact. Results: Trained Sages were able to offer meaningful input to researchers and present their own proposal at a conference. Lessons learned centered around continuously seeking feedback from participants, emphasizing co-learning, adapting to virtual engagement, and remaining flexible in structure and content of meetings. Conclusions: Results can inform future development of research advisory boards of older adult populations.

Original languageEnglish (US)
Pages (from-to)359-370
Number of pages12
JournalProgress in Community Health Partnerships: Research, Education, and Action
Volume14
Issue number3
DOIs
StatePublished - Sep 1 2020

Keywords

  • Access and evaluation
  • Community health partnerships
  • Community health research
  • Health priorities
  • Homebound persons
  • Manpower and services
  • Residential facilities

ASJC Scopus subject areas

  • Health(social science)
  • Education
  • Sociology and Political Science

Fingerprint Dive into the research topics of 'The Bureau of sages: Incorporating older adult voice into meaningful research'. Together they form a unique fingerprint.

Cite this