Abstract
Improved survival of patients with paediatric and congenital cardiac disease has led to a heightened awareness of the cognitive, neurodevelopmental, psychosocial, and physical functioning deficits that limit health, academic functioning, adaptive functioning, behavioural and emotional outcomes, health-related quality of life, and well-being for children and adults with congenital heart disease. The Cardiac Neurodevelopmental Outcome Collaborative was founded in 2016; its mission is to determine and implement best practices of neurodevelopmental and psychosocial services for individuals with paediatric and congenital heart disease and their families through clinical, quality improvement, and research initiatives. Cardiology in the Young is devoted to cardiovascular issues affecting the young, and older patients with congenital heart disease, or with other cardiac diseases acquired during childhood. The journal serves the interests of all professionals concerned with these topics. By design, the journal is international and multidisciplinary in its approach, and members of the editorial board take an active role in its mission, helping to make it an indispensable reference for paediatric and congenital cardiac care. All aspects of paediatric and congenital cardiac care are covered in the journal. The content includes original articles, brief reports, editorials, reviews, and papers devoted to continuing professional development. High-quality colour figures are published on a regular basis, and without charge to the authors. Regular supplements are published containing the abstracts of the annual meetings of the Association for European Paediatric and Congenital Cardiology, along with other occasional supplements. These supplements are supplied free to subscribers. The vision of Cardiology in the Young is to use print and electronic media to improve paediatric and congenital cardiac care. The mission of Cardiology in the Young is to be a premier global journal for paediatric and congenital cardiac care - an essential journal that spans the domains of patient care, research, education, and advocacy, and also spans geographical, temporal, and subspecialty boundaries. Cardiology in the Young and the Cardiac Neurodevelopment Outcome Collaborative are pleased to announce that Cardiology in the Young will serve as the official journal of the Cardiac Neurodevelopment Outcome Collaborative. This new partnership between the Cardiac Neurodevelopmental Outcome Collaborative and Cardiology in the Young will facilitate the dissemination of knowledge and recommendations to the scientific, clinical, and patient advocacy communities, ultimately improving paediatric and congenital cardiac care and outcomes for individuals with paediatric and congenital heart disease and their families.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 1595-1596 |
| Number of pages | 2 |
| Journal | Cardiology in the young |
| Volume | 30 |
| Issue number | 11 |
| DOIs | |
| State | Published - Nov 2020 |
Funding
A second set of manuscripts defining the cardiac neurodevelopmental research agenda will be published in an upcoming issue of Cardiology in the Young in 2021. These papers represent the work of a large, multidisciplinary, multinational group of medical experts and patient and caregiver stakeholders who convened for a 2-day meeting in 2018, funded by an R13 grant from the National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health (NIH) of the United States of America awarded to the Cardiac Neurodevelopmental Outcome Collaborative in partnership with Ann & Robert H. Lurie Children’s Hospital of Chicago. This group has been working collaboratively over the past 2 years to identify significant gaps in knowledge in cardiac neurodevelopmental care and outcomes, critical questions that must be answered, and investigations needed to address these critical questions. Results and recommendations based on this work will guide the investigational aims of the Cardiac Neurodevelopmental Outcome Collaborative over the next decade. We are confident that this new partnership between the Cardiac Neurodevelopmental Outcome Collaborative and Cardiology in the Young will facilitate the dissemination of knowledge and recommendations to the scientific, clinical, and patient advocacy communities, ultimately improving paediatric and congenital cardiac care and outcomes for individuals with congenital heart disease and their families.
Keywords
- Paediatric cardiology
- congenital heart disease
- neurodevelopmental outcomes
ASJC Scopus subject areas
- Pediatrics, Perinatology, and Child Health
- Cardiology and Cardiovascular Medicine
