The communication of uncertainty in health: A scoping review

Kerstin Kalke*, Hannah Studd, Courtney L. Scherr

*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

30 Scopus citations

Abstract

Objective: To conduct a scoping review of existing studies that examine communication strategies that address uncertainty in health and categorize them using the taxonomy of uncertainty. Methods: Relevant articles retrieved from ten databases were categorized according to the dimensions of the taxonomy of uncertainty, and study characteristics were extracted from each article. Results: All articles (n = 63) explored uncertainty in the context of probabilistic risk and related to scientific issues (n = 63; 100%). The majority focused on complexity (n = 24; 38.1%) and uncertainty experienced by patients (n = 52; 82.5%). Most utilized quantitative methods (n = 46; 73.0%), hypothetical scenarios (n = 49; 77.8%), and focused on cancer (n = 20; 31.7%). Theory guided messages and study design in fewer than half (n = 27; 42.9%). Conclusions: Heterogeneity in terminology used to refer to different types of uncertainties preclude a unified research agenda on uncertainty communication. Research predominately focuses on probability as the source of uncertainty, uncertainties related to scientific issues, and uncertainty experienced by patients. Practice implications: Additional efforts are needed to understand providers’ experience of uncertainty, and to identify strategies to address ambiguity. Future studies should use consistent terminology to allow for coherence and advancement of uncertainty communication scholarship. Continued efforts to refine the existing taxonomy should be undertaken.

Original languageEnglish (US)
Pages (from-to)1945-1961
Number of pages17
JournalPatient education and counseling
Volume104
Issue number8
DOIs
StatePublished - Aug 2021

Funding

The authors would like to thank Lauren McKeen McDonald, our departmental librarian, for her assistance in identifying keywords and relevant databases for the literature search.

Keywords

  • Decision-making
  • Health communication
  • Patient-provider communication
  • Risk communication
  • Taxonomy
  • Uncertainty

ASJC Scopus subject areas

  • General Medicine

Fingerprint

Dive into the research topics of 'The communication of uncertainty in health: A scoping review'. Together they form a unique fingerprint.

Cite this