The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative

Angela Lorts; Lauren Smyth; Robert J. Gajarski; Christina J. Vanderpluym; Mary Mehegan; Chet R. Villa; Jenna M. Murray; Robert A. Niebler; Christopher S. Almond; Philip Thrush; Matthew J. O'Connor; Jennifer Conway; David L. Sutcliffe; Jodi E. Lantz; Farhan Zafar; David L.S. Morales; David M. Peng; David N. Rosenthal

doi:10.1097/MAT.0000000000001133

The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative

Angela Lorts^*, Lauren Smyth, Robert J. Gajarski, Christina J. Vanderpluym, Mary Mehegan, Chet R. Villa, Jenna M. Murray, Robert A. Niebler, Christopher S. Almond, Philip Thrush, Matthew J. O'Connor, Jennifer Conway, David L. Sutcliffe, Jodi E. Lantz, Farhan Zafar, David L.S. Morales, David M. Peng, David N. Rosenthal

^*Corresponding author for this work

Pediatrics

Research output: Contribution to journal › Article › peer-review

38 Scopus citations

Abstract

Improving the outcomes of pediatric patients with congenital heart disease with end-stage heart failure depends on the collaboration of all stakeholders; this includes providers, patients and families, and industry representatives. Because of the rarity of this condition and the heterogeneity of heart failure etiologies that occur at pediatric centers, learnings must be shared between institutions and all disciplines to move the field forward. To foster collaboration, excel discovery, and bring data to the bedside, a new, collaborative quality improvement science network-ACTION (Advanced Cardiac Therapies Improving Outcomes Network)-was developed to meet the needs of the field. Existing gaps in care and the methods of improvement that will be used are described, along with the mission and vision, utility of real-world data for regulatory purposes, and the organizational structure of ACTION is described. ASAIO Journal 2020; 66:441-446.

Original language	English (US)
Pages (from-to)	441-446
Number of pages	6
Journal	ASAIO Journal
DOIs	https://doi.org/10.1097/MAT.0000000000001133
State	Accepted/In press - 2020

Keywords

Collaborative
Heart failure
Learning network
Quality improvement
Ventricular assist device

ASJC Scopus subject areas

Biophysics
Bioengineering
Biomaterials
Biomedical Engineering

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10.1097/MAT.0000000000001133

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Lorts, A., Smyth, L., Gajarski, R. J., Vanderpluym, C. J., Mehegan, M., Villa, C. R., Murray, J. M., Niebler, R. A., Almond, C. S., Thrush, P., O'Connor, M. J., Conway, J., Sutcliffe, D. L., Lantz, J. E., Zafar, F., Morales, D. L. S., Peng, D. M., & Rosenthal, D. N. (Accepted/In press). The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative. ASAIO Journal, 441-446. https://doi.org/10.1097/MAT.0000000000001133

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abstract = "Improving the outcomes of pediatric patients with congenital heart disease with end-stage heart failure depends on the collaboration of all stakeholders; this includes providers, patients and families, and industry representatives. Because of the rarity of this condition and the heterogeneity of heart failure etiologies that occur at pediatric centers, learnings must be shared between institutions and all disciplines to move the field forward. To foster collaboration, excel discovery, and bring data to the bedside, a new, collaborative quality improvement science network-ACTION (Advanced Cardiac Therapies Improving Outcomes Network)-was developed to meet the needs of the field. Existing gaps in care and the methods of improvement that will be used are described, along with the mission and vision, utility of real-world data for regulatory purposes, and the organizational structure of ACTION is described. ASAIO Journal 2020; 66:441-446.",

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author = "Angela Lorts and Lauren Smyth and Gajarski, {Robert J.} and Vanderpluym, {Christina J.} and Mary Mehegan and Villa, {Chet R.} and Murray, {Jenna M.} and Niebler, {Robert A.} and Almond, {Christopher S.} and Philip Thrush and O'Connor, {Matthew J.} and Jennifer Conway and Sutcliffe, {David L.} and Lantz, {Jodi E.} and Farhan Zafar and Morales, {David L.S.} and Peng, {David M.} and Rosenthal, {David N.}",

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Lorts, A, Smyth, L, Gajarski, RJ, Vanderpluym, CJ, Mehegan, M, Villa, CR, Murray, JM, Niebler, RA, Almond, CS, Thrush, P, O'Connor, MJ, Conway, J, Sutcliffe, DL, Lantz, JE, Zafar, F, Morales, DLS, Peng, DM & Rosenthal, DN 2020, 'The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative', ASAIO Journal, pp. 441-446. https://doi.org/10.1097/MAT.0000000000001133

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AU - Mehegan, Mary

AU - Villa, Chet R.

AU - Murray, Jenna M.

AU - Niebler, Robert A.

AU - Almond, Christopher S.

AU - Thrush, Philip

AU - O'Connor, Matthew J.

AU - Conway, Jennifer

AU - Sutcliffe, David L.

AU - Lantz, Jodi E.

AU - Zafar, Farhan

AU - Morales, David L.S.

AU - Peng, David M.

AU - Rosenthal, David N.

PY - 2020

Y1 - 2020

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The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative

Abstract

Keywords

ASJC Scopus subject areas

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