The Current State of Neonatal Neurodevelopmental Follow-up Programs in North America: A Children’s Hospitals Neonatal Consortium Report

on behalf of the Children’s Hospitals Neonatal Consortium

doi:10.1055/a-2283-8843

The Current State of Neonatal Neurodevelopmental Follow-up Programs in North America: A Children’s Hospitals Neonatal Consortium Report

on behalf of the Children’s Hospitals Neonatal Consortium

Pediatrics

Research output: Contribution to journal › Article › peer-review

5 Scopus citations

Abstract

Objective This study aimed to determine neonatal neurodevelopmental follow-up (NDFU) practices across academic centers. Study Design This study was a cross-sectional survey that addressed center-specific neonatal NDFU practices within the Children’s Hospitals Neonatal Consortium (CHNC). Results Survey response rate was 76%, and 97% of respondents had a formal NDFU program. Programs were commonly staffed by neonatologists (80%), physical therapists (77%), and nurse practitioners (74%). Median gestational age at birth identified for follow-up was ≤32 weeks (range 26–36). Median duration was 3 years (range 2–18). Ninety-seven percent of sites used Bayley Scales of Infant and Toddler Development, but instruments used varied across ages. Scores were recorded in discrete electronic data fields at 43% of sites. Social determinants of health data were collected by 63%. Care coordination and telehealth services were not universally available. Conclusion NDFU clinics are almost universal within CHNC centers. Commonalities and variances in practice highlight opportunities for data sharing and development of best practices.

Original language	English (US)
Pages (from-to)	1956-1964
Number of pages	9
Journal	American journal of perinatology
Volume	41
Issue number	14
DOIs	https://doi.org/10.1055/a-2283-8843
State	Published - Apr 5 2024

Funding

Beverly Brozanski, Jacquelyn Evans, Theresa Grover, Karna Murthy, Michael Padula, Eugenia Pallotto, Anthony Piazza, Kristina Reber and Billie Short and ex-officio David Durand, Francine Dykes, Jeanette Asselin, are executive members of the Children\u2019s Hospitals Neonatal Consortium, Inc., who developed and manage the Children\u2019s Hospital\u2019s Neonatal Database (CHND; thechnc.org). For more information, please contact: [email protected]. We are indebted to the following CHNC participating institutions that serve the infants and their families; these institutions (and their site sponsors) also have invested in and continue to participate in the CHND:

Keywords

Children’s Hospitals Neonatal Consortium
hypoxic–ischemic encephalopathy
neurodevelopmental follow-up

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Obstetrics and Gynecology

Access to Document

10.1055/a-2283-8843

Cite this

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title = "The Current State of Neonatal Neurodevelopmental Follow-up Programs in North America: A Children{\textquoteright}s Hospitals Neonatal Consortium Report",

abstract = "Objective This study aimed to determine neonatal neurodevelopmental follow-up (NDFU) practices across academic centers. Study Design This study was a cross-sectional survey that addressed center-specific neonatal NDFU practices within the Children{\textquoteright}s Hospitals Neonatal Consortium (CHNC). Results Survey response rate was 76%, and 97% of respondents had a formal NDFU program. Programs were commonly staffed by neonatologists (80%), physical therapists (77%), and nurse practitioners (74%). Median gestational age at birth identified for follow-up was ≤32 weeks (range 26–36). Median duration was 3 years (range 2–18). Ninety-seven percent of sites used Bayley Scales of Infant and Toddler Development, but instruments used varied across ages. Scores were recorded in discrete electronic data fields at 43% of sites. Social determinants of health data were collected by 63%. Care coordination and telehealth services were not universally available. Conclusion NDFU clinics are almost universal within CHNC centers. Commonalities and variances in practice highlight opportunities for data sharing and development of best practices.",

keywords = "Children{\textquoteright}s Hospitals Neonatal Consortium, hypoxic–ischemic encephalopathy, neurodevelopmental follow-up",

author = "{on behalf of the Children{\textquoteright}s Hospitals Neonatal Consortium} and Cardona, {Vilmaris Qui{\~n}ones} and Cohen, {Susan S.} and Noah Cook and Cizmeci, {Mehmet N.} and Amit Chandel and Robert DiGeronimo and Semsa Gogcu and Eni Jano and Katsuaki Kojima and Lee, {Kyong Soon} and McAdams, {Ryan M.} and Ogechukwu Menkiti and Ulrike Mietzsch and Eric Peeples and Elizabeth Sewell and Shenberger, {Jeffrey S.} and Massaro, {An N.} and Girija Natarajan and Rakesh Rao and Dizon, {Maria L.V.}",

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doi = "10.1055/a-2283-8843",

language = "English (US)",

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T1 - The Current State of Neonatal Neurodevelopmental Follow-up Programs in North America

T2 - A Children’s Hospitals Neonatal Consortium Report

AU - on behalf of the Children’s Hospitals Neonatal Consortium

AU - Cardona, Vilmaris Quiñones

AU - Cohen, Susan S.

AU - Cook, Noah

AU - Cizmeci, Mehmet N.

AU - Chandel, Amit

AU - DiGeronimo, Robert

AU - Gogcu, Semsa

AU - Jano, Eni

AU - Kojima, Katsuaki

AU - Lee, Kyong Soon

AU - McAdams, Ryan M.

AU - Menkiti, Ogechukwu

AU - Mietzsch, Ulrike

AU - Peeples, Eric

AU - Sewell, Elizabeth

AU - Shenberger, Jeffrey S.

AU - Massaro, An N.

AU - Natarajan, Girija

AU - Rao, Rakesh

AU - Dizon, Maria L.V.

PY - 2024/4/5

Y1 - 2024/4/5

N2 - Objective This study aimed to determine neonatal neurodevelopmental follow-up (NDFU) practices across academic centers. Study Design This study was a cross-sectional survey that addressed center-specific neonatal NDFU practices within the Children’s Hospitals Neonatal Consortium (CHNC). Results Survey response rate was 76%, and 97% of respondents had a formal NDFU program. Programs were commonly staffed by neonatologists (80%), physical therapists (77%), and nurse practitioners (74%). Median gestational age at birth identified for follow-up was ≤32 weeks (range 26–36). Median duration was 3 years (range 2–18). Ninety-seven percent of sites used Bayley Scales of Infant and Toddler Development, but instruments used varied across ages. Scores were recorded in discrete electronic data fields at 43% of sites. Social determinants of health data were collected by 63%. Care coordination and telehealth services were not universally available. Conclusion NDFU clinics are almost universal within CHNC centers. Commonalities and variances in practice highlight opportunities for data sharing and development of best practices.

AB - Objective This study aimed to determine neonatal neurodevelopmental follow-up (NDFU) practices across academic centers. Study Design This study was a cross-sectional survey that addressed center-specific neonatal NDFU practices within the Children’s Hospitals Neonatal Consortium (CHNC). Results Survey response rate was 76%, and 97% of respondents had a formal NDFU program. Programs were commonly staffed by neonatologists (80%), physical therapists (77%), and nurse practitioners (74%). Median gestational age at birth identified for follow-up was ≤32 weeks (range 26–36). Median duration was 3 years (range 2–18). Ninety-seven percent of sites used Bayley Scales of Infant and Toddler Development, but instruments used varied across ages. Scores were recorded in discrete electronic data fields at 43% of sites. Social determinants of health data were collected by 63%. Care coordination and telehealth services were not universally available. Conclusion NDFU clinics are almost universal within CHNC centers. Commonalities and variances in practice highlight opportunities for data sharing and development of best practices.

KW - Children’s Hospitals Neonatal Consortium

KW - hypoxic–ischemic encephalopathy

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The Current State of Neonatal Neurodevelopmental Follow-up Programs in North America: A Children’s Hospitals Neonatal Consortium Report

Abstract

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Keywords

ASJC Scopus subject areas

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