The Development of a Communication Tool to Facilitate the Cancer Trial Recruitment Process and Increase Research Literacy among Underrepresented Populations

Samantha Torres, Erika E. de la Riva, Laura S. Tom, Marla L. Clayman, Chirisse Taylor, Xinqi Dong, Melissa A. Simon*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

7 Scopus citations

Abstract

Despite increasing need to boost the recruitment of underrepresented populations into cancer trials and biobanking research, few tools exist for facilitating dialogue between researchers and potential research participants during the recruitment process. In this paper, we describe the initial processes of a user-centered design cycle to develop a standardized research communication tool prototype for enhancing research literacy among individuals from underrepresented populations considering enrollment in cancer research and biobanking studies. We present qualitative feedback and recommendations on the prototype’s design and content from potential end users: five clinical trial recruiters and ten potential research participants recruited from an academic medical center. Participants were given the prototype (a set of laminated cards) and were asked to provide feedback about the tool’s content, design elements, and word choices during semi-structured, in-person interviews. Results suggest that the prototype was well received by recruiters and patients alike. They favored the simplicity, lay language, and layout of the cards. They also noted areas for improvement, leading to card refinements that included the following: addressing additional topic areas, clarifying research processes, increasing the number of diverse images, and using alternative word choices. Our process for refining user interfaces and iterating content in early phases of design may inform future efforts to develop tools for use in clinical research or biobanking studies to increase research literacy.

Original languageEnglish (US)
Pages (from-to)792-798
Number of pages7
JournalJournal of Cancer Education
Volume30
Issue number4
DOIs
StatePublished - Dec 1 2015

Keywords

  • Biobanking
  • Cancer research
  • Clinical trials
  • Minority and underrepresented populations
  • Patient communication
  • Research literacy

ASJC Scopus subject areas

  • Oncology
  • Public Health, Environmental and Occupational Health

Fingerprint Dive into the research topics of 'The Development of a Communication Tool to Facilitate the Cancer Trial Recruitment Process and Increase Research Literacy among Underrepresented Populations'. Together they form a unique fingerprint.

Cite this