The Development of a New Computer Adaptive Test to Evaluate Feelings of Being Trapped in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feeling Trapped Item Bank

Noelle E. Carlozzi; Michael A. Kallen; Robin Hanks; Anna L. Kratz; Elizabeth A. Hahn; Tracey A. Brickell; Rael T. Lange; Louis M. French; Phillip A. Ianni; Jennifer A. Miner; Angelle M. Sander

doi:10.1016/j.apmr.2018.06.025

The Development of a New Computer Adaptive Test to Evaluate Feelings of Being Trapped in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feeling Trapped Item Bank

Noelle E. Carlozzi^*, Michael A. Kallen, Robin Hanks, Anna L. Kratz, Elizabeth A. Hahn, Tracey A. Brickell, Rael T. Lange, Louis M. French, Phillip A. Ianni, Jennifer A. Miner, Angelle M. Sander

^*Corresponding author for this work

Medical Social Sciences

Research output: Contribution to journal › Article › peer-review

16 Scopus citations

Abstract

Objective: To develop a new patient-reported outcome measure that captures feelings of being trapped that are commonly experienced by caregivers of individuals with traumatic brain injury (TBI). Design: Cross-sectional. Setting: Three TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility. Participants: Caregivers (N=560) of civilians with TBI (n=344) and caregivers of service members/veterans with TBI (n=216). Interventions: Not applicable. Outcome Measures: Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL) Feeling Trapped item bank. Results: From an initial item pool of 28 items, exploratory and confirmatory factor analyses supported the retention of 16 items. After graded response model (GRM) and differential item functioning analyses were conducted, 15 items were retained in the final measure. GRM calibration data, along with clinical expert input, were used to choose a 6-item, static short form (SF), and the calibration data were used for programming of the TBI-CareQOL Feeling Trapped computer adaptive test (CAT). CAT simulation analyses produced an r=0.99 correlation between CAT scores and the full item bank. Three-week short-form test-retest reliability was very good (r=0.84). Conclusions: The new TBI-CareQOL Feeling Trapped item bank was developed to provide a sensitive and efficient examination of the effect that feelings of being trapped, due to the caregiver role, have on health-related quality of life for caregivers of individuals with TBI. Both the CAT and corresponding 6-item SF demonstrate excellent psychometric properties. Future work is needed to establish the responsiveness of this measure to clinical interventions for these caregivers.

Original language	English (US)
Pages (from-to)	S43-S51
Journal	Archives of physical medicine and rehabilitation
Volume	100
Issue number	4
DOIs	https://doi.org/10.1016/j.apmr.2018.06.025
State	Published - Apr 2019

Funding

Supported by the National Institutes of Health - National Institute of Nursing Research (grant no. R01NR013658 ), the National Center for Advancing Translational Sciences (grant no. UL1TR000433 ), and the Defense and Veterans Brain Injury Center . Supported by the National Institutes of Health-National Institute of Nursing Research (grant no. R01NR013658), the National Center for Advancing Translational Sciences (grant no. UL1TR000433), and the Defense and Veterans Brain Injury Center. Supported by the National Institutes of Health- National Institute of Nursing Research (grant no. R01NR013658), the National Center for Advancing Translational Sciences (grant no. UL1TR000433), and the Defense and Veterans Brain Injury Center. TBI-CareQOL site investigators and coordinators: Noelle Carlozzi, Anna Kratz, Amy Austin, Mitchell Belanger, Micah Warschausky, Siera Goodnight, Jennifer Miner (University of Michigan, Ann, Arbor, MI); Angelle Sander (Baylor College of Medicine and TIRR Memorial Hermann, Houston, TX), Curtisa Light (TIRR Memorial Hermann, Houston, TX); Robin Hanks, Daniela Ristova-Trendov (Wayne State University/Rehabilitation Institute of Michigan, Detroit, MI); Nancy Chiaravalloti, Dennis Tirri, Belinda Washington (Kessler Foundation, West Orange, NJ); Tracey Brickell, Rael Lange, Louis French, Rachel Gartner, Megan Wright, Angela Driscoll, Diana Nora, Jamie Sullivan, Nicole Varbedian, Johanna Smith, Lauren Johnson, Heidi Mahatan, Mikelle Mooney, Mallory Frazier, Zoe Li, and Deanna Pruitt (Walter Reed National Military Medical Center/Defense and Veterans Brain Injury Center, Bethesda, MD). We thank the investigators, coordinators, and research associates/assistants who worked on this study and organizations who supported recruitment efforts. The University of Michigan Research Team would also like to thank the Hearts of Valor and the Brain Injury Association of Michigan for assistance with community outreach for recruitment efforts at this site. Supported by the National Institutes of Health- National Institute of Nursing Research (grant no. R01NR013658), the National Center for Advancing Translational Sciences (grant no. UL1TR000433), and the Defense and Veterans Brain Injury Center.

Keywords

Caregiver
Health-related quality of life
Patient reported outcome measures
Psychometrics
Rehabilitation
Traumatic brain injury
Veterans

ASJC Scopus subject areas

Physical Therapy, Sports Therapy and Rehabilitation
Rehabilitation

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10.1016/j.apmr.2018.06.025

Cite this

Carlozzi, N. E., Kallen, M. A., Hanks, R., Kratz, A. L., Hahn, E. A., Brickell, T. A., Lange, R. T., French, L. M., Ianni, P. A., Miner, J. A., & Sander, A. M. (2019). The Development of a New Computer Adaptive Test to Evaluate Feelings of Being Trapped in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feeling Trapped Item Bank. Archives of physical medicine and rehabilitation, 100(4), S43-S51. https://doi.org/10.1016/j.apmr.2018.06.025

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title = "The Development of a New Computer Adaptive Test to Evaluate Feelings of Being Trapped in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feeling Trapped Item Bank",

abstract = "Objective: To develop a new patient-reported outcome measure that captures feelings of being trapped that are commonly experienced by caregivers of individuals with traumatic brain injury (TBI). Design: Cross-sectional. Setting: Three TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility. Participants: Caregivers (N=560) of civilians with TBI (n=344) and caregivers of service members/veterans with TBI (n=216). Interventions: Not applicable. Outcome Measures: Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL) Feeling Trapped item bank. Results: From an initial item pool of 28 items, exploratory and confirmatory factor analyses supported the retention of 16 items. After graded response model (GRM) and differential item functioning analyses were conducted, 15 items were retained in the final measure. GRM calibration data, along with clinical expert input, were used to choose a 6-item, static short form (SF), and the calibration data were used for programming of the TBI-CareQOL Feeling Trapped computer adaptive test (CAT). CAT simulation analyses produced an r=0.99 correlation between CAT scores and the full item bank. Three-week short-form test-retest reliability was very good (r=0.84). Conclusions: The new TBI-CareQOL Feeling Trapped item bank was developed to provide a sensitive and efficient examination of the effect that feelings of being trapped, due to the caregiver role, have on health-related quality of life for caregivers of individuals with TBI. Both the CAT and corresponding 6-item SF demonstrate excellent psychometric properties. Future work is needed to establish the responsiveness of this measure to clinical interventions for these caregivers.",

keywords = "Caregiver, Health-related quality of life, Patient reported outcome measures, Psychometrics, Rehabilitation, Traumatic brain injury, Veterans",

author = "Carlozzi, {Noelle E.} and Kallen, {Michael A.} and Robin Hanks and Kratz, {Anna L.} and Hahn, {Elizabeth A.} and Brickell, {Tracey A.} and Lange, {Rael T.} and French, {Louis M.} and Ianni, {Phillip A.} and Miner, {Jennifer A.} and Sander, {Angelle M.}",

note = "Publisher Copyright: {\textcopyright} 2018 American Congress of Rehabilitation Medicine",

year = "2019",

month = apr,

doi = "10.1016/j.apmr.2018.06.025",

language = "English (US)",

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Carlozzi, NE, Kallen, MA, Hanks, R, Kratz, AL, Hahn, EA, Brickell, TA, Lange, RT, French, LM, Ianni, PA, Miner, JA & Sander, AM 2019, 'The Development of a New Computer Adaptive Test to Evaluate Feelings of Being Trapped in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feeling Trapped Item Bank', Archives of physical medicine and rehabilitation, vol. 100, no. 4, pp. S43-S51. https://doi.org/10.1016/j.apmr.2018.06.025

The Development of a New Computer Adaptive Test to Evaluate Feelings of Being Trapped in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feeling Trapped Item Bank. / Carlozzi, Noelle E.; Kallen, Michael A.; Hanks, Robin et al.
In: Archives of physical medicine and rehabilitation, Vol. 100, No. 4, 04.2019, p. S43-S51.

Research output: Contribution to journal › Article › peer-review

TY - JOUR

T1 - The Development of a New Computer Adaptive Test to Evaluate Feelings of Being Trapped in Caregivers of Individuals With Traumatic Brain Injury

T2 - TBI-CareQOL Feeling Trapped Item Bank

AU - Carlozzi, Noelle E.

AU - Kallen, Michael A.

AU - Hanks, Robin

AU - Kratz, Anna L.

AU - Hahn, Elizabeth A.

AU - Brickell, Tracey A.

AU - Lange, Rael T.

AU - French, Louis M.

AU - Ianni, Phillip A.

AU - Miner, Jennifer A.

AU - Sander, Angelle M.

PY - 2019/4

Y1 - 2019/4

N2 - Objective: To develop a new patient-reported outcome measure that captures feelings of being trapped that are commonly experienced by caregivers of individuals with traumatic brain injury (TBI). Design: Cross-sectional. Setting: Three TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility. Participants: Caregivers (N=560) of civilians with TBI (n=344) and caregivers of service members/veterans with TBI (n=216). Interventions: Not applicable. Outcome Measures: Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL) Feeling Trapped item bank. Results: From an initial item pool of 28 items, exploratory and confirmatory factor analyses supported the retention of 16 items. After graded response model (GRM) and differential item functioning analyses were conducted, 15 items were retained in the final measure. GRM calibration data, along with clinical expert input, were used to choose a 6-item, static short form (SF), and the calibration data were used for programming of the TBI-CareQOL Feeling Trapped computer adaptive test (CAT). CAT simulation analyses produced an r=0.99 correlation between CAT scores and the full item bank. Three-week short-form test-retest reliability was very good (r=0.84). Conclusions: The new TBI-CareQOL Feeling Trapped item bank was developed to provide a sensitive and efficient examination of the effect that feelings of being trapped, due to the caregiver role, have on health-related quality of life for caregivers of individuals with TBI. Both the CAT and corresponding 6-item SF demonstrate excellent psychometric properties. Future work is needed to establish the responsiveness of this measure to clinical interventions for these caregivers.

AB - Objective: To develop a new patient-reported outcome measure that captures feelings of being trapped that are commonly experienced by caregivers of individuals with traumatic brain injury (TBI). Design: Cross-sectional. Setting: Three TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility. Participants: Caregivers (N=560) of civilians with TBI (n=344) and caregivers of service members/veterans with TBI (n=216). Interventions: Not applicable. Outcome Measures: Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL) Feeling Trapped item bank. Results: From an initial item pool of 28 items, exploratory and confirmatory factor analyses supported the retention of 16 items. After graded response model (GRM) and differential item functioning analyses were conducted, 15 items were retained in the final measure. GRM calibration data, along with clinical expert input, were used to choose a 6-item, static short form (SF), and the calibration data were used for programming of the TBI-CareQOL Feeling Trapped computer adaptive test (CAT). CAT simulation analyses produced an r=0.99 correlation between CAT scores and the full item bank. Three-week short-form test-retest reliability was very good (r=0.84). Conclusions: The new TBI-CareQOL Feeling Trapped item bank was developed to provide a sensitive and efficient examination of the effect that feelings of being trapped, due to the caregiver role, have on health-related quality of life for caregivers of individuals with TBI. Both the CAT and corresponding 6-item SF demonstrate excellent psychometric properties. Future work is needed to establish the responsiveness of this measure to clinical interventions for these caregivers.

KW - Caregiver

KW - Health-related quality of life

KW - Patient reported outcome measures

KW - Psychometrics

KW - Rehabilitation

KW - Traumatic brain injury

KW - Veterans

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The Development of a New Computer Adaptive Test to Evaluate Feelings of Being Trapped in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feeling Trapped Item Bank

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