Abstract
Objective: To develop a new measure of caregiver strain for use in caregivers of individuals with traumatic brain injury (TBI), Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL) Caregiver Strain. Design: Qualitative data, literature reviews, and cross-sectional survey study. Setting: Three TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility. Participants: Caregivers (N=560) of civilians (n=344) or service members/veterans (SMVs) with TBI (n=216). Interventions: Not applicable. Main Outcome Measure: TBI-CareQOL Caregiver Strain Item Bank. Results: Exploratory and confirmatory factor analyses, a graded response model (GRM) and differential item functioning supported the retention of 33 items in the final measure. GRM calibration data was used to inform the selection of a 6-item static short form, and to program the TBI-CareQOL Caregiver Strain computer-adaptive test (CAT). CAT simulation analyses indicated a 0.97 correlation between the CAT scores and the full item-bank. Three-week test-retest reliability was strong (r=0.83). Conclusions: The new TBI-CareQOL Caregiver Strain CAT and corresponding 6-item short form were developed using established rigorous measurement development standards; this is the first self-reported measure developed to evaluate caregiver strain in caregivers of individuals with TBI.
| Original language | English (US) |
|---|---|
| Pages (from-to) | S13-S21 |
| Journal | Archives of physical medicine and rehabilitation |
| Volume | 100 |
| Issue number | 4 |
| DOIs | |
| State | Published - Apr 1 2019 |
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Keywords
- Caregiver
- Health-related quality of life
- Military family
- Patient reported outcome
- Rehabilitation
- Traumatic brain injury
- Veterans
ASJC Scopus subject areas
- Physical Therapy, Sports Therapy and Rehabilitation
- Rehabilitation
Cite this
}
The Development of a New Computer-Adaptive Test to Evaluate Strain in Caregivers of Individuals With TBI : TBI-CareQOL Caregiver Strain. / Carlozzi, Noelle E.; Kallen, Michael Anthony; Ianni, Phillip A.; Hahn, Elizabeth A; French, Louis M.; Lange, Rael T.; Brickell, Tracey A.; Hanks, Robin; Sander, Angelle M.
In: Archives of physical medicine and rehabilitation, Vol. 100, No. 4, 01.04.2019, p. S13-S21.Research output: Contribution to journal › Article
TY - JOUR
T1 - The Development of a New Computer-Adaptive Test to Evaluate Strain in Caregivers of Individuals With TBI
T2 - TBI-CareQOL Caregiver Strain
AU - Carlozzi, Noelle E.
AU - Kallen, Michael Anthony
AU - Ianni, Phillip A.
AU - Hahn, Elizabeth A
AU - French, Louis M.
AU - Lange, Rael T.
AU - Brickell, Tracey A.
AU - Hanks, Robin
AU - Sander, Angelle M.
PY - 2019/4/1
Y1 - 2019/4/1
N2 - Objective: To develop a new measure of caregiver strain for use in caregivers of individuals with traumatic brain injury (TBI), Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL) Caregiver Strain. Design: Qualitative data, literature reviews, and cross-sectional survey study. Setting: Three TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility. Participants: Caregivers (N=560) of civilians (n=344) or service members/veterans (SMVs) with TBI (n=216). Interventions: Not applicable. Main Outcome Measure: TBI-CareQOL Caregiver Strain Item Bank. Results: Exploratory and confirmatory factor analyses, a graded response model (GRM) and differential item functioning supported the retention of 33 items in the final measure. GRM calibration data was used to inform the selection of a 6-item static short form, and to program the TBI-CareQOL Caregiver Strain computer-adaptive test (CAT). CAT simulation analyses indicated a 0.97 correlation between the CAT scores and the full item-bank. Three-week test-retest reliability was strong (r=0.83). Conclusions: The new TBI-CareQOL Caregiver Strain CAT and corresponding 6-item short form were developed using established rigorous measurement development standards; this is the first self-reported measure developed to evaluate caregiver strain in caregivers of individuals with TBI.
AB - Objective: To develop a new measure of caregiver strain for use in caregivers of individuals with traumatic brain injury (TBI), Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL) Caregiver Strain. Design: Qualitative data, literature reviews, and cross-sectional survey study. Setting: Three TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility. Participants: Caregivers (N=560) of civilians (n=344) or service members/veterans (SMVs) with TBI (n=216). Interventions: Not applicable. Main Outcome Measure: TBI-CareQOL Caregiver Strain Item Bank. Results: Exploratory and confirmatory factor analyses, a graded response model (GRM) and differential item functioning supported the retention of 33 items in the final measure. GRM calibration data was used to inform the selection of a 6-item static short form, and to program the TBI-CareQOL Caregiver Strain computer-adaptive test (CAT). CAT simulation analyses indicated a 0.97 correlation between the CAT scores and the full item-bank. Three-week test-retest reliability was strong (r=0.83). Conclusions: The new TBI-CareQOL Caregiver Strain CAT and corresponding 6-item short form were developed using established rigorous measurement development standards; this is the first self-reported measure developed to evaluate caregiver strain in caregivers of individuals with TBI.
KW - Caregiver
KW - Health-related quality of life
KW - Military family
KW - Patient reported outcome
KW - Rehabilitation
KW - Traumatic brain injury
KW - Veterans
UR - http://www.scopus.com/inward/record.url?scp=85052198937&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85052198937&partnerID=8YFLogxK
U2 - 10.1016/j.apmr.2018.05.033
DO - 10.1016/j.apmr.2018.05.033
M3 - Article
VL - 100
SP - S13-S21
JO - Archives of Physical Medicine and Rehabilitation
JF - Archives of Physical Medicine and Rehabilitation
SN - 0003-9993
IS - 4
ER -