The Duality of “Goals of Care” Language: A Qualitative Focus Group Study With Frontline Clinicians

Michaella M. Reif, Katharine E. Secunda, Justin T. Clapp, Elizabeth M. Viglianti, Ruben Mylvaganam, Michael Peliska, Jane L. Holl, Jacqueline M. Kruser*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

2 Scopus citations

Abstract

Context: The phrase “goals of care” (GOC) is common in serious illness care, yet it lacks clarity and consistency. Understanding how GOC is used across healthcare contexts is an opportunity to identify and mitigate root causes of serious illness miscommunication. Objectives: We sought to characterize frontline palliative and critical care clinicians’ understanding and use of the phrase GOC in clinical practice. Methods: We conducted a secondary qualitative thematic analysis of focus group transcripts (n = 10), gathered as part of a parent study of care delivery for patients with respiratory failure. Participants (n = 59) were members of the palliative and critical care interprofessional teams at two academic medical centers. Results: Clinicians primarily use GOC as a shorthand signal among team members to indicate a patient is nearing the end of life. This signal can also indicate conflict with patients and families when clinicians’ expectations—typically an expected “transition” toward a different type of care—are not met. Clinicians distinguish their clinical use of GOC from an “ideal” meaning of the phrase, which is broader than end of life and focused on patients’ values. Palliative care specialists encourage other clinicians to shift toward the “ideal” GOC concept in clinical practice. Conclusion: Frontline palliative and critical care clinicians understand a duality in GOC, as an idealized concept and as an expeditious signal for clinical care. Our findings suggest ambiguous phrases like GOC persist because of unmet needs for better ways to discuss and address diverse and complex priorities for patients with serious illness.

Original languageEnglish (US)
Pages (from-to)e658-e665
JournalJournal of Pain and Symptom Management
Volume66
Issue number6
DOIs
StatePublished - Dec 2023

Keywords

  • Health communication
  • Medical decision-making
  • Palliative care

ASJC Scopus subject areas

  • Clinical Neurology
  • Anesthesiology and Pain Medicine
  • General Nursing

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