TY - JOUR
T1 - The Global State of the Genetic Counseling Profession
AU - Abacan, Mary Ann
AU - Alsubaie, Lamia
AU - Barlow-Stewart, Kristine
AU - Caanen, Beppy
AU - Cordier, Christophe
AU - Courtney, Eliza
AU - Davoine, Emeline
AU - Edwards, Janice
AU - Elackatt, Niby J.
AU - Gardiner, Kate
AU - Guan, Yue
AU - Huang, Lian Hua
AU - Malmgren, Charlotta Ingvoldstad
AU - Kejriwal, Sahil
AU - Kim, Hyon J.
AU - Lambert, Deborah
AU - Lantigua-Cruz, Paulina Araceli
AU - Lee, Juliana M.H.
AU - Lodahl, Marianne
AU - Lunde, Åshild
AU - Macaulay, Shelley
AU - Macciocca, Ivan
AU - Margarit, Sonia
AU - Middleton, Anna
AU - Moldovan, Ramona
AU - Ngeow, Joanne
AU - Obregon-Tito, Alexandra J.
AU - Ormond, Kelly E.
AU - Paneque, Milena
AU - Powell, Karen
AU - Sanghavi, Kunal
AU - Scotcher, Diana
AU - Scott, Jenna
AU - Juhé, Clara Serra
AU - Shkedi-Rafid, Shiri
AU - Wessels, Tina Marié
AU - Yoon, Sook Yee
AU - Wicklund, Catherine
N1 - Funding Information:
Acknowledgements Thanks to Irene Feroce, Maria Hintze, Ulla Par-isaari, Sari Rasi, Ilene Slegers, and Angela Trepanier, for providing unpublished information cited in this paper, and to Kim Zayhowski and Tacy Framhein for help with formatting of the paper. Finally, open access publication of this work was supported by Wellcome grant [206194] to Connecting Science, Society and Ethics Research Group and Wellcome Genome Campus, Cambridge UK.
Publisher Copyright:
© 2018, The Author(s).
PY - 2019/2/1
Y1 - 2019/2/1
N2 - The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.
AB - The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.
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U2 - 10.1038/s41431-018-0252-x
DO - 10.1038/s41431-018-0252-x
M3 - Review article
C2 - 30291341
AN - SCOPUS:85054494212
SN - 1018-4813
VL - 27
SP - 183
EP - 197
JO - European Journal of Human Genetics
JF - European Journal of Human Genetics
IS - 2
ER -