The Global State of the Genetic Counseling Profession

Mary Ann Abacan, Lamia Alsubaie, Kristine Barlow-Stewart, Beppy Caanen, Christophe Cordier, Eliza Courtney, Emeline Davoine, Janice Edwards, Niby J. Elackatt, Kate Gardiner, Yue Guan, Lian Hua Huang, Charlotta Ingvoldstad Malmgren, Sahil Kejriwal, Hyon J. Kim, Deborah Lambert, Paulina Araceli Lantigua-Cruz, Juliana M.H. Lee, Marianne Lodahl, Åshild LundeShelley Macaulay, Ivan Macciocca, Sonia Margarit, Anna Middleton, Ramona Moldovan, Joanne Ngeow, Alexandra J. Obregon-Tito, Kelly E. Ormond*, Milena Paneque, Karen Powell, Kunal Sanghavi, Diana Scotcher, Jenna Scott, Clara Serra Juhé, Shiri Shkedi-Rafid, Tina Marié Wessels, Sook Yee Yoon, Catherine Wicklund

*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

140 Scopus citations


The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.

Original languageEnglish (US)
Pages (from-to)183-197
Number of pages15
JournalEuropean Journal of Human Genetics
Issue number2
StatePublished - Feb 1 2019

ASJC Scopus subject areas

  • Genetics(clinical)
  • Genetics


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