The PROMIS satisfaction with social participation measures demonstrated responsiveness in diverse clinical populations

Elizabeth A Hahn*, Jennifer L. Beaumont, Paul A. Pilkonis, Sofia F Garcia, Susan Magasi, Darren A. Dewalt, David Cella

*Corresponding author for this work

Research output: Contribution to journalArticle

26 Citations (Scopus)

Abstract

Objectives To conduct a longitudinal evaluation of Patient-Reported Outcomes Measurement Information System (PROMIS) social function measures (satisfaction with participation in social roles and satisfaction with participation in discretionary social activities) in English-speaking people with chronic health conditions. Study Design and Setting Adults receiving treatment for chronic heart failure (CHF), chronic obstructive pulmonary disease (COPD), chronic back pain, or depression completed PROMIS computer-based measures of social health at two time points approximately 3 months apart and global ratings of change. Linear mixed effects models and standardized response means were estimated for the two social function measures. Results A total of 599 people participated: 79 with stable COPD, 46 COPD exacerbation, 60 with CHF, 196 with depression, and 218 with back pain. Four groups experienced improvement over time, one (COPD stable) changed very little. Those who reported better global ratings of change in overall health experienced larger changes in social function than those who reported the same or worse global health. Conclusion This study provided support for responsiveness to change for two PROMIS social function measures. These results provide further evidence of the PROMIS goal to enable comparable measurement of universally relevant symptoms and experiences that apply to people with a variety of diseases.

Original languageEnglish (US)
Pages (from-to)135-141
Number of pages7
JournalJournal of Clinical Epidemiology
Volume73
DOIs
StatePublished - May 1 2016

Fingerprint

Social Participation
Information Systems
Chronic Obstructive Pulmonary Disease
Back Pain
Population
Health
Heart Failure
Depression
Chronic Pain
Disease Progression
Patient Reported Outcome Measures

Keywords

  • Chronic disease
  • Linear models
  • PROMIS
  • Patient-reported outcomes
  • Responsiveness
  • Social function
  • Social health

ASJC Scopus subject areas

  • Epidemiology

Cite this

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title = "The PROMIS satisfaction with social participation measures demonstrated responsiveness in diverse clinical populations",
abstract = "Objectives To conduct a longitudinal evaluation of Patient-Reported Outcomes Measurement Information System (PROMIS) social function measures (satisfaction with participation in social roles and satisfaction with participation in discretionary social activities) in English-speaking people with chronic health conditions. Study Design and Setting Adults receiving treatment for chronic heart failure (CHF), chronic obstructive pulmonary disease (COPD), chronic back pain, or depression completed PROMIS computer-based measures of social health at two time points approximately 3 months apart and global ratings of change. Linear mixed effects models and standardized response means were estimated for the two social function measures. Results A total of 599 people participated: 79 with stable COPD, 46 COPD exacerbation, 60 with CHF, 196 with depression, and 218 with back pain. Four groups experienced improvement over time, one (COPD stable) changed very little. Those who reported better global ratings of change in overall health experienced larger changes in social function than those who reported the same or worse global health. Conclusion This study provided support for responsiveness to change for two PROMIS social function measures. These results provide further evidence of the PROMIS goal to enable comparable measurement of universally relevant symptoms and experiences that apply to people with a variety of diseases.",
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author = "Hahn, {Elizabeth A} and Beaumont, {Jennifer L.} and Pilkonis, {Paul A.} and Garcia, {Sofia F} and Susan Magasi and Dewalt, {Darren A.} and David Cella",
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The PROMIS satisfaction with social participation measures demonstrated responsiveness in diverse clinical populations. / Hahn, Elizabeth A; Beaumont, Jennifer L.; Pilkonis, Paul A.; Garcia, Sofia F; Magasi, Susan; Dewalt, Darren A.; Cella, David.

In: Journal of Clinical Epidemiology, Vol. 73, 01.05.2016, p. 135-141.

Research output: Contribution to journalArticle

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AU - Magasi, Susan

AU - Dewalt, Darren A.

AU - Cella, David

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AB - Objectives To conduct a longitudinal evaluation of Patient-Reported Outcomes Measurement Information System (PROMIS) social function measures (satisfaction with participation in social roles and satisfaction with participation in discretionary social activities) in English-speaking people with chronic health conditions. Study Design and Setting Adults receiving treatment for chronic heart failure (CHF), chronic obstructive pulmonary disease (COPD), chronic back pain, or depression completed PROMIS computer-based measures of social health at two time points approximately 3 months apart and global ratings of change. Linear mixed effects models and standardized response means were estimated for the two social function measures. Results A total of 599 people participated: 79 with stable COPD, 46 COPD exacerbation, 60 with CHF, 196 with depression, and 218 with back pain. Four groups experienced improvement over time, one (COPD stable) changed very little. Those who reported better global ratings of change in overall health experienced larger changes in social function than those who reported the same or worse global health. Conclusion This study provided support for responsiveness to change for two PROMIS social function measures. These results provide further evidence of the PROMIS goal to enable comparable measurement of universally relevant symptoms and experiences that apply to people with a variety of diseases.

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