The relationships between fatigue, quality of life, and family impact among children with special health care needs

I. Chan Huang*, Mary Anderson, Pranav Gandhi, Sanjeev Tuli, Kevin Krull, Jin Shei Lai, John Nackashi, Elizabeth Shenkman

*Corresponding author for this work

Research output: Contribution to journalArticle

8 Scopus citations

Abstract

Objective To examine the relationships among pediatric fatigue, health-related quality of life (HRQOL), and family impact among children with special health care needs (CSHCNs), specifically whether HRQOL mediates the influence of fatigue on family impact. Methods 266 caregivers of CSHCNs were studied. The Pediatric Quality of Life Inventory Multidimensional Fatigue Scale, Pediatric Quality of Life Inventory Generic Scale, and Impact on Family Scale were used to measure fatigue, HRQOL, and family impact, respectively. Linear regressions were used to analyze the designated relationships; path analyses were performed to quantify the mediating effects of HRQOL on fatigue-family impact relationship. Results Although greater fatigue was associated with family impact (p <. 05), the association was not significant after accounting for HRQOL. Path analyses indicated the direct effect of fatigue on family impact was not significant (p >. 05), whereas physical and emotional functioning significantly mediated the fatigue-family impact relationship (p <. 001). Conclusion Fatigue is related to family impact among CSHCNs, acting through the impairment in HRQOL.

Original languageEnglish (US)
Pages (from-to)722-731
Number of pages10
JournalJournal of pediatric psychology
Volume38
Issue number7
DOIs
StatePublished - Aug 1 2013

Keywords

  • children with special health care needs
  • chronic condition
  • family impact
  • fatigue
  • quality of life

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Developmental and Educational Psychology

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