The role of palliative care in critical congenital heart disease

Mjaye Leslie Mazwi*, Natalia Henner, Roxanne Kirsch

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

17 Scopus citations

Abstract

Patients with critical congenital heart disease are exposed to significant lifetime morbidity and mortality. Prenatal diagnosis can provide opportunities for anticipatory co-management of patients between palliative subspecialists and the cardiac care team. The benefits of palliative care include support for longitudinal decision-making and avoidance of interventions not consistent with family goals. Effectively counseling families requires an up-to-date understanding of outcomes and knowledge of provider biases. Patient-proxy reported quality of life (QOL) is highly variable in this population and healthcare providers need to be aware of limitations in their own subjective assessment of QOL.

Original languageEnglish (US)
Pages (from-to)128-132
Number of pages5
JournalSeminars in Perinatology
Volume41
Issue number2
DOIs
StatePublished - Mar 1 2017

Keywords

  • Critical Congenital Heart Disease
  • Palliative Care

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Obstetrics and Gynecology

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