The Social Lives of Individuals with Traumatic Brain Injury

Jessica L Feuston, Charlotte G Marshall-Fricker , Anne Marie Piper Hazelrig

Research output: Chapter in Book/Report/Conference proceedingConference contribution

5 Scopus citations

Abstract

Traumatic Brain Injury (TBI) can affect all aspects of an individual's life, including physical ability, communication, and mental health, and present chronic health conditions that persist throughout the lifespan. Although prior work documents a decrease in social interaction following brain injury, little is known about how individuals with TBI engage in social behavior during their recovery, how others in their lives participate, and how these interactions occur in both online and offline contexts. We examine these issues through an interview study involving individuals with TBI, as well as caregivers and social contacts of individuals with TBI. Our analysis identifies the concept of social re-emergence, a non-linear process of developing a new social identity that involves withdrawing from social life, developing goals for social participation, disclosing health information for social support and acceptance, and attaining social independence.
Original languageEnglish (US)
Title of host publicationCHI '17 Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems
PublisherACM
Pages182-194
Number of pages13
ISBN (Print)978-1450346559
StatePublished - 2017

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