The use of patient experience feedback in rehabilitation quality improvement and codesign activities: Scoping review of the literature

T. S. Jesus*, B. Z. Stern, J. Struhar, A. Deutsch, A. W. Heinemann

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

11 Scopus citations

Abstract

Objective: To characterize the literature, reported enablers, and gaps on the use of patient experience feedback for person-centered rehabilitation quality improvement and codesign activities. Design: Scoping Review. Data sources: Scientific databases (PubMed, CINAHL, Rehabdata, Scopus, Web of Science, ProQuest), website searches (e.g. Beryl Institute), snowballing, and key-informant recommendations. Methods: Two independent reviewers performed title and abstract screenings and full-text reviews. Eligibility focused on English-language, peer-reviewed (all time) and gray literature (last five years) that used patient experience feedback in rehabilitation improvement activities. The aims, settings, methods, findings, implications, and reported limitations were extracted, followed by content analyses identifying reported enablers and gaps. Results: Among the 901 unique references and 52 full texts reviewed, ten were included: four used patient experience surveys for improving patient experiences; six used codesign methodologies to engage patient feedback in service improvement activities. Implementation enablers included securing managerial support, having a structured methodology and facilitator, using efficient processes, engaging staff experiences, and using appreciative inquiry. Reported study gaps included limited follow-up, low sample sizes, analytical limitations, lack of reported limitations, or narrow range of perspectives (e.g. not from people with severe impairments). Conclusion: Few examples of the use of patient experience feedback in quality improvement or codesign activities were found in the rehabilitation literature. Patient experience improvement activities relied exclusively on retrospective survey data, which were not combined with often more actionable forms (e.g. qualitative, real time) of patient experience feedback. Further research might consider design of activities that collect and use patient experience feedback for rehabilitation service improvements.

Original languageEnglish (US)
Pages (from-to)261-276
Number of pages16
JournalClinical Rehabilitation
Volume37
Issue number2
DOIs
StatePublished - Feb 2023

Funding

The authors are indebted to the four key informants who provided additional references: Terrence Carolan, Managing Director, Medical Rehabilitation, CARF International, USA; Cheryl Cott, Professor Emerita, University of Toronto, Canada; Nicola Kayes, Professor and Director, Centre for Person-Centred Research, Auckland University of Technology, New Zealand; Christina Papadimitriou, Associate Professor, Oakland University, USA. The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Tiago Jesus completed this work under an Advanced Rehabilitation Research Training grant from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR grant number: 90ARHF0003). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this publication do not necessarily represent the policy of NIDILRR, ACL, or HHS and endorsement by the US Federal Government should not be assumed. The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Tiago Jesus completed this work under an Advanced Rehabilitation Research Training grant from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR grant number: 90ARHF0003). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this publication do not necessarily represent the policy of NIDILRR, ACL, or HHS and endorsement by the US Federal Government should not be assumed.

Keywords

  • codesign
  • patient experience
  • person-centered care
  • quality improvement
  • rehabilitation

ASJC Scopus subject areas

  • Rehabilitation
  • Physical Therapy, Sports Therapy and Rehabilitation

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