Therapeutic patient education in atopic dermatitis

Worldwide experiences

Jean Francois Stalder*, Claire Bernier, Alan Ball, Linda De Raeve, Uwe Gieler, Mette Deleuran, Danielle Marcoux, Lawrence F. Eichenfield, Peter Lio, Sue Lewis-Jones, Carlo Gelmetti, Roberto Takaoka, Christine Chiaverini, Laurent Misery, Sébastien Barbarot

*Corresponding author for this work

Research output: Contribution to journalArticle

38 Citations (Scopus)

Abstract

Therapeutic patient education (TPE) has proven effective in increasing treatment adherence and improving quality of life (QoL) for patients with numerous chronic diseases, especially atopic dermatitis (AD). This study was undertaken to identify worldwide TPE experiences in AD treatment. Experts from 23 hospitals, located in 11 countries, responded to a questionnaire on 10 major items. Patients in TPE programs were mainly children and adolescents with moderate to severe AD or markedly affected QoL. Individual and collective approaches were used. Depending on the center, the number of sessions varied from one to six (corresponding to 2 to 12 hours of education), and 20 to 200 patients were followed each year. Each center's education team comprised multidisciplinary professionals (e.g., doctors, nurses, psychologists). Evaluations were based on clinical assessment, QoL, a satisfaction index, or some combination of the three. When funding was obtained, it came from regional health authorities (France), insurance companies (Germany), donations (United States), or pharmaceutical firms (Japan, Italy). The role of patient associations was always highlighted, but their involvement in the TPE process varied from one country to another. Despite the nonexhaustive approach, our findings demonstrate the increasing interest in TPE for managing individuals with AD. In spite of the cultural and financial differences between countries, there is a consensus among experts to integrate education into the treatment of eczema.

Original languageEnglish (US)
Pages (from-to)329-334
Number of pages6
JournalPediatric Dermatology
Volume30
Issue number3
DOIs
StatePublished - May 1 2013

Fingerprint

Patient Education
Atopic Dermatitis
Quality of Life
Therapeutics
Education
Eczema
Insurance
Italy
France
Germany
Consensus
Japan
Chronic Disease
Nurses
Psychology
Health
Pharmaceutical Preparations

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Dermatology

Cite this

Stalder, J. F., Bernier, C., Ball, A., De Raeve, L., Gieler, U., Deleuran, M., ... Barbarot, S. (2013). Therapeutic patient education in atopic dermatitis: Worldwide experiences. Pediatric Dermatology, 30(3), 329-334. https://doi.org/10.1111/pde.12024
Stalder, Jean Francois ; Bernier, Claire ; Ball, Alan ; De Raeve, Linda ; Gieler, Uwe ; Deleuran, Mette ; Marcoux, Danielle ; Eichenfield, Lawrence F. ; Lio, Peter ; Lewis-Jones, Sue ; Gelmetti, Carlo ; Takaoka, Roberto ; Chiaverini, Christine ; Misery, Laurent ; Barbarot, Sébastien. / Therapeutic patient education in atopic dermatitis : Worldwide experiences. In: Pediatric Dermatology. 2013 ; Vol. 30, No. 3. pp. 329-334.
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Stalder, JF, Bernier, C, Ball, A, De Raeve, L, Gieler, U, Deleuran, M, Marcoux, D, Eichenfield, LF, Lio, P, Lewis-Jones, S, Gelmetti, C, Takaoka, R, Chiaverini, C, Misery, L & Barbarot, S 2013, 'Therapeutic patient education in atopic dermatitis: Worldwide experiences', Pediatric Dermatology, vol. 30, no. 3, pp. 329-334. https://doi.org/10.1111/pde.12024

Therapeutic patient education in atopic dermatitis : Worldwide experiences. / Stalder, Jean Francois; Bernier, Claire; Ball, Alan; De Raeve, Linda; Gieler, Uwe; Deleuran, Mette; Marcoux, Danielle; Eichenfield, Lawrence F.; Lio, Peter; Lewis-Jones, Sue; Gelmetti, Carlo; Takaoka, Roberto; Chiaverini, Christine; Misery, Laurent; Barbarot, Sébastien.

In: Pediatric Dermatology, Vol. 30, No. 3, 01.05.2013, p. 329-334.

Research output: Contribution to journalArticle

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AU - Ball, Alan

AU - De Raeve, Linda

AU - Gieler, Uwe

AU - Deleuran, Mette

AU - Marcoux, Danielle

AU - Eichenfield, Lawrence F.

AU - Lio, Peter

AU - Lewis-Jones, Sue

AU - Gelmetti, Carlo

AU - Takaoka, Roberto

AU - Chiaverini, Christine

AU - Misery, Laurent

AU - Barbarot, Sébastien

PY - 2013/5/1

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Stalder JF, Bernier C, Ball A, De Raeve L, Gieler U, Deleuran M et al. Therapeutic patient education in atopic dermatitis: Worldwide experiences. Pediatric Dermatology. 2013 May 1;30(3):329-334. https://doi.org/10.1111/pde.12024