Understanding and enhancing support group participation among adolescent and young adult cancer survivors: The impact of integrating adolescent and young adult cancer navigation services

Rina S. Fox; Laura B. Oswald; Brynn Fowler; Jennifer Bourneuf Carrera; Jennifer Reichek; David Victorson; Stacy D. Sanford

doi:10.1089/jayao.2020.0164

Understanding and enhancing support group participation among adolescent and young adult cancer survivors: The impact of integrating adolescent and young adult cancer navigation services

Rina S. Fox, Laura B. Oswald, Brynn Fowler, Jennifer Bourneuf Carrera, Jennifer Reichek, David Victorson, Stacy D. Sanford^*

^*Corresponding author for this work

Research output: Contribution to journal › Review article › peer-review

5 Scopus citations

Abstract

This quality improvement initiative aimed to (1) explore the impact of adolescent and young adult (AYA)specific navigation on attendance at a monthly peer support group for survivors aged 18–39 at a large comprehensive cancer center, and (2) better understanding attendees’ preferences for group structure. Group attendance significantly increased following integration of AYA navigation. Using an online survey, we identified priority topics for discussion and desired changes to group organization, leading to modifications to group structure. Results highlight the value of having dedicated staff who proactively orient patients to resources tailored to their unique needs, and the importance of flexible program development that incorporates stakeholder input.

Original language	English (US)
Pages (from-to)	488-492
Number of pages	5
Journal	Journal of adolescent and young adult oncology
Volume	10
Issue number	4
DOIs	https://doi.org/10.1089/jayao.2020.0164
State	Published - Aug 2021

Funding

The Northwestern Adolescent and Young Adult Cancer Program is funded in part by a partnership grant from Teen Cancer America.

Keywords

Patient navigation
Quality improvement
Support group
Survey

ASJC Scopus subject areas

Oncology
Pediatrics, Perinatology, and Child Health

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1089/jayao.2020.0164

Cite this

Fox, R. S., Oswald, L. B., Fowler, B., Carrera, J. B., Reichek, J., Victorson, D., & Sanford, S. D. (2021). Understanding and enhancing support group participation among adolescent and young adult cancer survivors: The impact of integrating adolescent and young adult cancer navigation services. Journal of adolescent and young adult oncology, 10(4), 488-492. https://doi.org/10.1089/jayao.2020.0164

@article{817dad2413654dd6aa6d07296facbb2b,

title = "Understanding and enhancing support group participation among adolescent and young adult cancer survivors: The impact of integrating adolescent and young adult cancer navigation services",

abstract = "This quality improvement initiative aimed to (1) explore the impact of adolescent and young adult (AYA)specific navigation on attendance at a monthly peer support group for survivors aged 18–39 at a large comprehensive cancer center, and (2) better understanding attendees{\textquoteright} preferences for group structure. Group attendance significantly increased following integration of AYA navigation. Using an online survey, we identified priority topics for discussion and desired changes to group organization, leading to modifications to group structure. Results highlight the value of having dedicated staff who proactively orient patients to resources tailored to their unique needs, and the importance of flexible program development that incorporates stakeholder input.",

keywords = "Patient navigation, Quality improvement, Support group, Survey",

author = "Fox, {Rina S.} and Oswald, {Laura B.} and Brynn Fowler and Carrera, {Jennifer Bourneuf} and Jennifer Reichek and David Victorson and Sanford, {Stacy D.}",

note = "Publisher Copyright: {\textcopyright} Mary Ann Liebert, Inc.",

year = "2021",

month = aug,

doi = "10.1089/jayao.2020.0164",

language = "English (US)",

volume = "10",

pages = "488--492",

journal = "Journal of adolescent and young adult oncology",

issn = "2156-5333",

publisher = "Mary Ann Liebert Inc.",

number = "4",

}

Fox, RS, Oswald, LB, Fowler, B, Carrera, JB, Reichek, J , Victorson, D & Sanford, SD 2021, 'Understanding and enhancing support group participation among adolescent and young adult cancer survivors: The impact of integrating adolescent and young adult cancer navigation services', Journal of adolescent and young adult oncology, vol. 10, no. 4, pp. 488-492. https://doi.org/10.1089/jayao.2020.0164

Understanding and enhancing support group participation among adolescent and young adult cancer survivors: The impact of integrating adolescent and young adult cancer navigation services. / Fox, Rina S.; Oswald, Laura B.; Fowler, Brynn et al.
In: Journal of adolescent and young adult oncology, Vol. 10, No. 4, 08.2021, p. 488-492.

Research output: Contribution to journal › Review article › peer-review

TY - JOUR

T1 - Understanding and enhancing support group participation among adolescent and young adult cancer survivors

T2 - The impact of integrating adolescent and young adult cancer navigation services

AU - Fox, Rina S.

AU - Oswald, Laura B.

AU - Fowler, Brynn

AU - Carrera, Jennifer Bourneuf

AU - Reichek, Jennifer

AU - Victorson, David

AU - Sanford, Stacy D.

PY - 2021/8

Y1 - 2021/8

N2 - This quality improvement initiative aimed to (1) explore the impact of adolescent and young adult (AYA)specific navigation on attendance at a monthly peer support group for survivors aged 18–39 at a large comprehensive cancer center, and (2) better understanding attendees’ preferences for group structure. Group attendance significantly increased following integration of AYA navigation. Using an online survey, we identified priority topics for discussion and desired changes to group organization, leading to modifications to group structure. Results highlight the value of having dedicated staff who proactively orient patients to resources tailored to their unique needs, and the importance of flexible program development that incorporates stakeholder input.

AB - This quality improvement initiative aimed to (1) explore the impact of adolescent and young adult (AYA)specific navigation on attendance at a monthly peer support group for survivors aged 18–39 at a large comprehensive cancer center, and (2) better understanding attendees’ preferences for group structure. Group attendance significantly increased following integration of AYA navigation. Using an online survey, we identified priority topics for discussion and desired changes to group organization, leading to modifications to group structure. Results highlight the value of having dedicated staff who proactively orient patients to resources tailored to their unique needs, and the importance of flexible program development that incorporates stakeholder input.

KW - Patient navigation

KW - Quality improvement

KW - Support group

KW - Survey

UR - http://www.scopus.com/inward/record.url?scp=85108385093&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85108385093&partnerID=8YFLogxK

U2 - 10.1089/jayao.2020.0164

DO - 10.1089/jayao.2020.0164

M3 - Review article

C2 - 33275855

AN - SCOPUS:85108385093

SN - 2156-5333

VL - 10

SP - 488

EP - 492

JO - Journal of adolescent and young adult oncology

JF - Journal of adolescent and young adult oncology

IS - 4

ER -

Understanding and enhancing support group participation among adolescent and young adult cancer survivors: The impact of integrating adolescent and young adult cancer navigation services

Abstract

Funding

Keywords

ASJC Scopus subject areas

UN SDGs

Access to Document

Other files and links

Fingerprint

Cite this