Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury

Establishing the Reliability and Validity of PROMIS Social Health Measures

Noelle E. Carlozzi, Phillip A. Ianni, Rael T. Lange, Tracey A. Brickell, Michael Anthony Kallen, Elizabeth A Hahn, Louis M. French, David Cella, Jennifer A. Miner, David S. Tulsky

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

Objective: To examine the reliability and validity of the short form (SF) and computer adaptive test (CAT) versions of the Patient-Reported Outcomes Measurement Information System (PROMIS) measures of social health of caregivers of civilians and service members/veterans (SMVs) with traumatic brain injury (TBI). Design: Self-report questionnaires administered through an online data collection platform. Setting: Hospital and community-based outreach at 3 TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility. Participants: Caregivers (N=560) (344 civilians and 216 military) of individuals with a documented TBI. Intervention: Not applicable. Main Outcome Measures: A total of 5 PROMIS social health measures. Results: All 5 PROMIS social health measures exceeded the a priori criterion for internal consistency reliability (≥0.70); most PROMIS measures met the criterion for test-retest reliability (≥0.70) in the civilian sample; in the SMV sample, test-retest reliability was generally below this criterion, except for social isolation. For both samples, convergent validity was supported by moderate correlations between the 5 PROMIS social health measures and related measures, and discriminant validity was supported by low correlations between PROMIS social health measures and measures of dissimilar constructs. Most PROMIS scores indicated significantly worse social health in both samples of those caring for individuals who were low functioning. Finally, impairment rates in social health were elevated for those caring for low-functioning individuals, especially in the SMV sample. Conclusions: The PROMIS CAT and SF social health measures have potential clinical utility for use in caregivers of civilians and SMVs with TBI.

Original languageEnglish (US)
Pages (from-to)S110-S118
JournalArchives of physical medicine and rehabilitation
Volume100
Issue number4
DOIs
StatePublished - Apr 1 2019

Fingerprint

Health Information Systems
Veterans
Reproducibility of Results
Caregivers
Quality of Life
Information Systems
Health
Community-Institutional Relations
Social Isolation
Traumatic Brain Injury
Patient Reported Outcome Measures
Self Report
Rehabilitation
Outcome Assessment (Health Care)

Keywords

  • Brain injuries, traumatic
  • Caregivers
  • Patient reported outcome measures
  • Psychometrics
  • Rehabilitation
  • Self report
  • Social support
  • Surveys and questionnaires
  • Veterans

ASJC Scopus subject areas

  • Physical Therapy, Sports Therapy and Rehabilitation
  • Rehabilitation

Cite this

@article{664d583380f948ac9140a3c4665226c1,
title = "Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Social Health Measures",
abstract = "Objective: To examine the reliability and validity of the short form (SF) and computer adaptive test (CAT) versions of the Patient-Reported Outcomes Measurement Information System (PROMIS) measures of social health of caregivers of civilians and service members/veterans (SMVs) with traumatic brain injury (TBI). Design: Self-report questionnaires administered through an online data collection platform. Setting: Hospital and community-based outreach at 3 TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility. Participants: Caregivers (N=560) (344 civilians and 216 military) of individuals with a documented TBI. Intervention: Not applicable. Main Outcome Measures: A total of 5 PROMIS social health measures. Results: All 5 PROMIS social health measures exceeded the a priori criterion for internal consistency reliability (≥0.70); most PROMIS measures met the criterion for test-retest reliability (≥0.70) in the civilian sample; in the SMV sample, test-retest reliability was generally below this criterion, except for social isolation. For both samples, convergent validity was supported by moderate correlations between the 5 PROMIS social health measures and related measures, and discriminant validity was supported by low correlations between PROMIS social health measures and measures of dissimilar constructs. Most PROMIS scores indicated significantly worse social health in both samples of those caring for individuals who were low functioning. Finally, impairment rates in social health were elevated for those caring for low-functioning individuals, especially in the SMV sample. Conclusions: The PROMIS CAT and SF social health measures have potential clinical utility for use in caregivers of civilians and SMVs with TBI.",
keywords = "Brain injuries, traumatic, Caregivers, Patient reported outcome measures, Psychometrics, Rehabilitation, Self report, Social support, Surveys and questionnaires, Veterans",
author = "Carlozzi, {Noelle E.} and Ianni, {Phillip A.} and Lange, {Rael T.} and Brickell, {Tracey A.} and Kallen, {Michael Anthony} and Hahn, {Elizabeth A} and French, {Louis M.} and David Cella and Miner, {Jennifer A.} and Tulsky, {David S.}",
year = "2019",
month = "4",
day = "1",
doi = "10.1016/j.apmr.2018.06.026",
language = "English (US)",
volume = "100",
pages = "S110--S118",
journal = "Archives of Physical Medicine and Rehabilitation",
issn = "0003-9993",
publisher = "W.B. Saunders Ltd",
number = "4",

}

Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury : Establishing the Reliability and Validity of PROMIS Social Health Measures. / Carlozzi, Noelle E.; Ianni, Phillip A.; Lange, Rael T.; Brickell, Tracey A.; Kallen, Michael Anthony; Hahn, Elizabeth A; French, Louis M.; Cella, David; Miner, Jennifer A.; Tulsky, David S.

In: Archives of physical medicine and rehabilitation, Vol. 100, No. 4, 01.04.2019, p. S110-S118.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury

T2 - Establishing the Reliability and Validity of PROMIS Social Health Measures

AU - Carlozzi, Noelle E.

AU - Ianni, Phillip A.

AU - Lange, Rael T.

AU - Brickell, Tracey A.

AU - Kallen, Michael Anthony

AU - Hahn, Elizabeth A

AU - French, Louis M.

AU - Cella, David

AU - Miner, Jennifer A.

AU - Tulsky, David S.

PY - 2019/4/1

Y1 - 2019/4/1

N2 - Objective: To examine the reliability and validity of the short form (SF) and computer adaptive test (CAT) versions of the Patient-Reported Outcomes Measurement Information System (PROMIS) measures of social health of caregivers of civilians and service members/veterans (SMVs) with traumatic brain injury (TBI). Design: Self-report questionnaires administered through an online data collection platform. Setting: Hospital and community-based outreach at 3 TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility. Participants: Caregivers (N=560) (344 civilians and 216 military) of individuals with a documented TBI. Intervention: Not applicable. Main Outcome Measures: A total of 5 PROMIS social health measures. Results: All 5 PROMIS social health measures exceeded the a priori criterion for internal consistency reliability (≥0.70); most PROMIS measures met the criterion for test-retest reliability (≥0.70) in the civilian sample; in the SMV sample, test-retest reliability was generally below this criterion, except for social isolation. For both samples, convergent validity was supported by moderate correlations between the 5 PROMIS social health measures and related measures, and discriminant validity was supported by low correlations between PROMIS social health measures and measures of dissimilar constructs. Most PROMIS scores indicated significantly worse social health in both samples of those caring for individuals who were low functioning. Finally, impairment rates in social health were elevated for those caring for low-functioning individuals, especially in the SMV sample. Conclusions: The PROMIS CAT and SF social health measures have potential clinical utility for use in caregivers of civilians and SMVs with TBI.

AB - Objective: To examine the reliability and validity of the short form (SF) and computer adaptive test (CAT) versions of the Patient-Reported Outcomes Measurement Information System (PROMIS) measures of social health of caregivers of civilians and service members/veterans (SMVs) with traumatic brain injury (TBI). Design: Self-report questionnaires administered through an online data collection platform. Setting: Hospital and community-based outreach at 3 TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility. Participants: Caregivers (N=560) (344 civilians and 216 military) of individuals with a documented TBI. Intervention: Not applicable. Main Outcome Measures: A total of 5 PROMIS social health measures. Results: All 5 PROMIS social health measures exceeded the a priori criterion for internal consistency reliability (≥0.70); most PROMIS measures met the criterion for test-retest reliability (≥0.70) in the civilian sample; in the SMV sample, test-retest reliability was generally below this criterion, except for social isolation. For both samples, convergent validity was supported by moderate correlations between the 5 PROMIS social health measures and related measures, and discriminant validity was supported by low correlations between PROMIS social health measures and measures of dissimilar constructs. Most PROMIS scores indicated significantly worse social health in both samples of those caring for individuals who were low functioning. Finally, impairment rates in social health were elevated for those caring for low-functioning individuals, especially in the SMV sample. Conclusions: The PROMIS CAT and SF social health measures have potential clinical utility for use in caregivers of civilians and SMVs with TBI.

KW - Brain injuries, traumatic

KW - Caregivers

KW - Patient reported outcome measures

KW - Psychometrics

KW - Rehabilitation

KW - Self report

KW - Social support

KW - Surveys and questionnaires

KW - Veterans

UR - http://www.scopus.com/inward/record.url?scp=85053356967&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85053356967&partnerID=8YFLogxK

U2 - 10.1016/j.apmr.2018.06.026

DO - 10.1016/j.apmr.2018.06.026

M3 - Article

VL - 100

SP - S110-S118

JO - Archives of Physical Medicine and Rehabilitation

JF - Archives of Physical Medicine and Rehabilitation

SN - 0003-9993

IS - 4

ER -