@article{664d583380f948ac9140a3c4665226c1,
title = "Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Social Health Measures",
abstract = "Objective: To examine the reliability and validity of the short form (SF) and computer adaptive test (CAT) versions of the Patient-Reported Outcomes Measurement Information System (PROMIS) measures of social health of caregivers of civilians and service members/veterans (SMVs) with traumatic brain injury (TBI). Design: Self-report questionnaires administered through an online data collection platform. Setting: Hospital and community-based outreach at 3 TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility. Participants: Caregivers (N=560) (344 civilians and 216 military) of individuals with a documented TBI. Intervention: Not applicable. Main Outcome Measures: A total of 5 PROMIS social health measures. Results: All 5 PROMIS social health measures exceeded the a priori criterion for internal consistency reliability (≥0.70); most PROMIS measures met the criterion for test-retest reliability (≥0.70) in the civilian sample; in the SMV sample, test-retest reliability was generally below this criterion, except for social isolation. For both samples, convergent validity was supported by moderate correlations between the 5 PROMIS social health measures and related measures, and discriminant validity was supported by low correlations between PROMIS social health measures and measures of dissimilar constructs. Most PROMIS scores indicated significantly worse social health in both samples of those caring for individuals who were low functioning. Finally, impairment rates in social health were elevated for those caring for low-functioning individuals, especially in the SMV sample. Conclusions: The PROMIS CAT and SF social health measures have potential clinical utility for use in caregivers of civilians and SMVs with TBI.",
keywords = "Brain injuries, traumatic, Caregivers, Patient reported outcome measures, Psychometrics, Rehabilitation, Self report, Social support, Surveys and questionnaires, Veterans",
author = "Carlozzi, {Noelle E.} and Ianni, {Phillip A.} and Lange, {Rael T.} and Brickell, {Tracey A.} and Kallen, {Michael A.} and Hahn, {Elizabeth A.} and French, {Louis M.} and David Cella and Miner, {Jennifer A.} and Tulsky, {David S.}",
note = "Funding Information: Supported by the National Institutes of Health - National Institute of Nursing Research (grant no. R01NR013658 ), the National Center for Advancing Translational Sciences (grant no. UL1TR000433 ), and the Defense and Veterans Brain Injury Center . Funding Information: Supported by the National Institutes of Health-National Institute of Nursing Research (grant no. R01NR013658), the National Center for Advancing Translational Sciences (grant no. UL1TR000433), and the Defense and Veterans Brain Injury Center. Supported by the National Institutes of Health- National Institute of Nursing Research (grant no. R01NR013658), the National Center for Advancing Translational Sciences (grant no. UL1TR000433), and the Defense and Veterans Brain Injury Center. TBI-CareQOL site investigators and coordinators: Noelle Carlozzi, Anna Kratz, Amy Austin, Mitchell Belanger, Micah Warschausky, Siera Goodnight, Jennifer Miner (University of Michigan, Ann, Arbor, MI); Angelle Sander (Baylor College of Medicine and TIRR Memorial Hermann, Houston, TX), Curtisa Light (TIRR Memorial Hermann, Houston, TX); Robin Hanks, Daniela Ristova-Trendov (Wayne State University/Rehabilitation Institute of Michigan, Detroit, MI); Nancy Chiaravalloti, Dennis Tirri, Belinda Washington (Kessler Foundation, West Orange, NJ); Tracey Brickell, Rael Lange, Louis French, Rachel Gartner, Megan Wright, Angela Driscoll, Diana Nora, Jamie Sullivan, Nicole Varbedian, Johanna Smith, Lauren Johnson, Heidi Mahatan, Mikelle Mooney, Mallory Frazier, Zoe Li, and Deanna Pruitt (Walter Reed National Military Medical Center/Defense and Veterans Brain Injury Center, Bethesda, MD). We thank the investigators, coordinators, and research associates/assistants who worked on this study and organizations who supported recruitment efforts. The University of Michigan Research Team would also like to thank the Hearts of Valor and the Brain Injury Association of Michigan for assistance with community outreach for recruitment efforts at this site. Supported by the National Institutes of Health- National Institute of Nursing Research (grant no. R01NR013658), the National Center for Advancing Translational Sciences (grant no. UL1TR000433), and the Defense and Veterans Brain Injury Center. Publisher Copyright: {\textcopyright} 2018 American Congress of Rehabilitation Medicine",
year = "2019",
month = apr,
doi = "10.1016/j.apmr.2018.06.026",
language = "English (US)",
volume = "100",
pages = "S110--S118",
journal = "Archives of Physical Medicine and Rehabilitation",
issn = "0003-9993",
publisher = "W.B. Saunders Ltd",
number = "4",
}