TY - JOUR
T1 - Understanding lived experiences through multiple perspectives
T2 - Caregiving as an exemplar
AU - Haywood, Carol
AU - Lawlor, Mary C.
N1 - Funding Information:
No specific funding was received for the preparation of this manuscript, but support for the original research was provided, in part, through grants from the Patient-Centered Outcomes Research Institute (PCORI) Pipe-line-to-Proposal Award Program (Tier I, Contract #3414629), the California Foundation for Occupational Therapy, the Society for the Study of Occupation, and the University of Southern California Chan Division of Occupational Science and Occupational Therapy. The opinions expressed here are those of the authors and do not necessarily reflect opinions of the research funding agencies.
Publisher Copyright:
© 2018, © 2018 The Journal of Occupational Science Incorporated.
PY - 2019/1/2
Y1 - 2019/1/2
N2 - Experiences are multidimensional, impactful, and often rooted in occupations, where meaning is felt, and people engage with others and learn about themselves and the world. Experiences are complex phenomena influenced by a multitude of factors, and they have a strong connection to health and well-being. Studies of lived experiences have been central to the development of occupational science. Capturing the essence of experiences can be challenging, but integrating data from multiple perspectives in research designs is a valuable strategy to address challenges to understanding experiences, including their interpersonal, interdependent, and intersubjective natures. This is especially critical for understanding circumstances in which two or more people share experiences or coordinate action together, such as in cases of caregiving. In this paper, we outline the strength and utility of methodological approaches that integrate multiple perspectives in order to understand experiences as they are situated beyond the individual. We draw on original data from a narrative and phenomenological study of lived experiences among adolescents and young adults with spinal cord injuries and their caregivers as an exemplar for discussion. Relative contributions to occupational science and limitations of a multi-perspective approach are considered.
AB - Experiences are multidimensional, impactful, and often rooted in occupations, where meaning is felt, and people engage with others and learn about themselves and the world. Experiences are complex phenomena influenced by a multitude of factors, and they have a strong connection to health and well-being. Studies of lived experiences have been central to the development of occupational science. Capturing the essence of experiences can be challenging, but integrating data from multiple perspectives in research designs is a valuable strategy to address challenges to understanding experiences, including their interpersonal, interdependent, and intersubjective natures. This is especially critical for understanding circumstances in which two or more people share experiences or coordinate action together, such as in cases of caregiving. In this paper, we outline the strength and utility of methodological approaches that integrate multiple perspectives in order to understand experiences as they are situated beyond the individual. We draw on original data from a narrative and phenomenological study of lived experiences among adolescents and young adults with spinal cord injuries and their caregivers as an exemplar for discussion. Relative contributions to occupational science and limitations of a multi-perspective approach are considered.
KW - Caregivers
KW - Methods
KW - Occupational science
KW - Personal narratives
KW - Qualitative research
KW - Spinal cord injuries
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U2 - 10.1080/14427591.2018.1521738
DO - 10.1080/14427591.2018.1521738
M3 - Article
AN - SCOPUS:85054926813
SN - 1442-7591
VL - 26
SP - 128
EP - 139
JO - Journal of Occupational Science
JF - Journal of Occupational Science
IS - 1
ER -