Voices of Informal Caregivers and Community Stakeholders: Whether and How to Develop an Informal Caregiver Training Program

Sara S. Phillips, Daiva M. Ragas, Laura S. Tom, Nadia Hajjar, Xin Qi Dong, Melissa A. Simon*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

3 Scopus citations

Abstract

Our primary objective was to gather pilot data from caregivers and stakeholders to guide the development of a training program to assist informal caregivers in re-entering the job market. The goal of the program would be to help caregivers rebound from their incurred economic burden by transitioning into a paid caregiving or other health-service role. The economic burden they bear often necessitates a return to the workforce following caregiving; yet the act of returning is complicated by an extended absence from the workforce and a lack of experience in other verifiably skilled and paid roles. We interviewed 37 stakeholders and 25 caregivers of a chronically or terminally ill family member or friend in a suburban collar county close to Chicago. The interview questions considered the economic impact of illness, as well as the feasibility, logistics, and options of a training program for caregivers. Our data gathered from caregivers and leaders within this community support the acceptability of such a training program for informal caregivers, and also provide practical advice for development and implementation related to training cost, length, content, and instructional practices.

Original languageEnglish (US)
Pages (from-to)550-556
Number of pages7
JournalJournal of Community Health
Volume41
Issue number3
DOIs
StatePublished - Jun 1 2016

Keywords

  • Economic resilience
  • Informal caregiver
  • Stakeholder
  • Training and employment
  • Workforce enhancement

ASJC Scopus subject areas

  • Health(social science)
  • Public Health, Environmental and Occupational Health

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