Vulvar cancer patients' quality of life: A qualitative assessment

M. Janda, A. Obermair, David Cella, A. J. Crandon, Michael Trimmel*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

106 Scopus citations


To develop a vulvar cancer-specific quality of life (QOL) subscale to accompany the Functional Assessment of Cancer-General (FACT-G) questionnaire, semistructured interviews were performed with 15 patients treated for vulvar cancer (FIGO stage 0-3). All but one patient, who received chemoradiotherapy, were treated by radical vulvectomy and six patients received a groin lymph node dissection. Patients experienced reductions in several aspects of QOL including emotional functioning, physical functioning, social functioning, sexuality, and body image. Six patients suffered from lymphedema of the legs with a mean severity of 3.5 on a 10-point scale. Four patients reported pruritus (severity rating 8.5). Seven patients expressed a need for more information about the illness and treatment. Only four patients returned to employment after treatment, and all of these patients reported work-related problems. Reductions in sexual functioning were a major concern for five patients, all younger than 65 years. Other topics were groin discomfort after removal of the lymph nodes and disturbance by odor from the vulva. Results of this study revealed vulvar cancer-specific reductions in QOL for inclusion in the newly developed vulvar cancer-specific subscale.

Original languageEnglish (US)
Pages (from-to)875-881
Number of pages7
JournalInternational Journal of Gynecological Cancer
Issue number5
StatePublished - Sep 1 2004


  • Qualitative research
  • Quality of life
  • Vulvar cancer

ASJC Scopus subject areas

  • Obstetrics and Gynecology
  • Oncology
  • Cancer Research


Dive into the research topics of 'Vulvar cancer patients' quality of life: A qualitative assessment'. Together they form a unique fingerprint.

Cite this