Web based "Global Virtual Museum of Congenital Cardiac Pathology"

Jorge M. Giroud*, Jeffrey P. Jacobs, F. Jay Fricker, Diane Spicer, Carl Backer, Rodney C.G. Franklin, Marie J. Beland, Otto N. Krogmann, Vera D. Aiello, Steven D. Colan, Allen D. Everett, J. William Gaynor, Hiromi Kurosawa, Bohdan Maruszewski, Giovanni Stellin, Christo I. Tchervenkov, Henry L. Walters, Paul Weinberg, Mark A. Fogel, Marshall L. JacobsMartin J. Elliott, Robert H. Anderson

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

9 Scopus citations

Abstract

Significant advances have been made in the care of children with cardiac disease. Most advances have been guided by anatomical and functional understanding of the changes from normal imposed by the cardiac malformations. As survival has increased, it has become rare to obtain untreated and unaltered hearts for morphologic examination. This limited availability of new specimens, coupled with the inevitable deterioration of currently available specimens, means that alternative methods of "preservation" become increasingly important. In this review, we propose and outline a format for the development of a Global Virtual Museum of Congenital Cardiac Pathology, based on established principles of anatomical analysis, classification based on an internationally accepted nomenclature (The International Pediatric and Congenital Cardiac Code or IPCCC), and the use of digital methods of storage of images and videos. In this fashion, we hope to preserve, in a virtual sense, the currently available anatomical specimens.

Original languageEnglish (US)
Pages (from-to)91-97
Number of pages7
JournalProgress in Pediatric cardiology
Volume33
Issue number1
DOIs
StatePublished - Jan 2012

Funding

This online encyclopedia may be viewed at [ http://www.ipccc-awg.net/ ] [23] . The Children's Heart Foundation has provided financial support to the Archiving Working Group Web Portal for the year 2011 and 2012. The Grant money from The Children's Heart Foundation has allowed the Senior Archivist of the AWG, Diane Spicer, BS, to spend more time with each of the collections that she is able to photograph. Table 1 documents the rationale for the Grant as well as the hypothesis and Specific Aims. Table 2 documents the members of the Investigative Team on this Grant.

Keywords

  • Cardiac encyclopedia
  • Cardiac nomenclature
  • Congenital heart disease
  • Databases
  • International Pediatric and Congenital Cardiac Code
  • Internet

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Cardiology and Cardiovascular Medicine

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