When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority

Kyle B. Brothers*, Ingrid A. Holm, Janet E. Childerhose, Armand H M Antommaria, Barbara A. Bernhardt, Ellen Wright Clayton, Bruce D. Gelb, Steven Joffe, John A. Lynch, Jennifer B. McCormick, Laurence B. McCullough, D. Williams Parsons, Agnes S. Sundaresan, Wendy A. Wolf, Joon Ho Yu, Benjamin S. Wilfond, Benjamin E. Berkman, Leslie G. Biesecker, Sara C. Hull, Sawona BiswasWendy K. Chung, Barbara Koenig, Lisa S. Lehmann, Michelle Lewis, Amy L. McGuire, Melody J. Slashinski, Lainie F. Ross, Joseph S. Salama, Debra Skinner, Holly K. Tabor, Susan M. Wolf, Cassandra Perry, Ariel Chandler, Beth Cobb, John Harley, Melanie Myers, Rosetta Chiavacci, John Connolly, Andy Faucett, Samantha Fetterolf, David Ledbetter, Janet Williams, Kelly Ehrlich, Malia Fullerton, Kelly Hansen, Andrea Hartzler, Aaron Scrol, Lucy Carruth, Sharon Aufox, Maureen Smith, Pediatrics Workgroup of the Clinical Sequencing Exploratory Research (CSER) Consortium, Consent, Education, Regulation, and Consultation Workgroup of the Electronic Medical Records and Genomics (eMERGE) Network

*Corresponding author for this work

Research output: Contribution to journalComment/debate

9 Scopus citations
Original languageEnglish (US)
Pages (from-to)226-231.e1
JournalJournal of Pediatrics
Volume168
DOIs
StatePublished - Jan 1 2016

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

Cite this

Brothers, K. B., Holm, I. A., Childerhose, J. E., Antommaria, A. H. M., Bernhardt, B. A., Clayton, E. W., Gelb, B. D., Joffe, S., Lynch, J. A., McCormick, J. B., McCullough, L. B., Parsons, D. W., Sundaresan, A. S., Wolf, W. A., Yu, J. H., Wilfond, B. S., Berkman, B. E., Biesecker, L. G., Hull, S. C., ... Consent, Education, Regulation, and Consultation Workgroup of the Electronic Medical Records and Genomics (eMERGE) Network (2016). When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority. Journal of Pediatrics, 168, 226-231.e1. https://doi.org/10.1016/j.jpeds.2015.09.020