"You Can See the Connections": Facilitating Visualization of Care Priorities in People Living with Multiple Chronic Health Conditions

Hyeyoung Ryu, Andrew B.L. Berry, Catherine Y. Lim, Andrea Hartzler, Tad Hirsch, Juanita I. Trejo, Zoë Abigail Bermet, Brandi Crawford-Gallagher, Vi Tran, Dawn Ferguson, David J. Cronkite, Brooks Tiffany, John Weeks, James Ralston

Research output: Chapter in Book/Report/Conference proceedingConference contribution

5 Scopus citations

Abstract

Individuals with multiple chronic health conditions (MCC) often face an overwhelming set of self-management work, resulting in a need to set care priorities. Yet, much self-management work is invisible to healthcare providers. This study aimed to understand how to support the development and sharing of connections between personal values and self-management tasks through the facilitated use of an interactive visualization system: Conversation Canvas. We conducted a field study with 13 participants with MCC, 3 caregivers, and 7 primary care providers in Washington State. Analysis of interviews with MCC participants showed that developing visualizations of connections between personal values, self-management tasks, and health conditions helped individuals make sense of connections relevant to their health and wellbeing, recognize a road map of central issues and their impacts, feel respected and understood, share priorities with providers, and support value-aligned changes. These findings demonstrated potential for the guided process and visualization to support priorities-aligned care.

Original languageEnglish (US)
Title of host publicationCHI 2023 - Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems
PublisherAssociation for Computing Machinery
ISBN (Electronic)9781450394215
DOIs
StatePublished - Apr 19 2023
Event2023 CHI Conference on Human Factors in Computing Systems, CHI 2023 - Hamburg, Germany
Duration: Apr 23 2023Apr 28 2023

Publication series

NameConference on Human Factors in Computing Systems - Proceedings

Conference

Conference2023 CHI Conference on Human Factors in Computing Systems, CHI 2023
Country/TerritoryGermany
CityHamburg
Period4/23/234/28/23

Keywords

  • multiple chronic health conditions
  • patient priorities care
  • patient-clinician communication
  • reflection
  • sensemaking
  • values
  • visualization

ASJC Scopus subject areas

  • Human-Computer Interaction
  • Computer Graphics and Computer-Aided Design
  • Software

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